SAVE THE DATE!
PD AND ATYPICAL PARKINSONISM (PSP, LBD, MSA, CBD) CAREGIVER SYMPOSIUM
SATURDAY, JULY 12 – ALL DAY – FOSTER CITY
The Stanford PD Caregiver Support Program is pleased to present an all-day Parkinson’s Disease and atypical parkinsonism caregiver symposium, to be held at the Crowne Plaza Foster City on Saturday July 12, from 9am to 4pm. This hotel is right off highways 92 and 101.
Our 2012 caregiver symposium got great reviews and we aim for the same quality level or higher in 2014. Nearly all of the 2014 symposium speakers will be different from 2012.
Symposium speakers will address one of these key topics:
* dealing with the emotional and psychological aspects of being a caregiver or care partner, and
* the practical aspects of dealing with a loved one’s symptoms.
TWO GREAT SPEAKERS LINED UP
One keynote speaker is Kathleen Poston, MD, MS, movement disorder specialist at Stanford, and a favorite guest speaker at many PD support group meetings. She will speak on the topic of what caregivers can do to help address cognitive, memory, and mood symptoms.
Another keynote speaker is Rosalind Chuang, MD, movement disorder specialist at Stanford, and another favorite guest speaker at support group meetings. She will speak on the topic of what caregivers can do to help address motor and autonomic symptoms.
Both speakers are very familiar with atypical parkinsonism disorders. Many in our support group see these MDs for regular care or have seen them for a second opinion.
Breakout sessions are on topics including care options, coping with dementia, financial issues in elder care, etc. Presenters come from Family Caregiver Alliance and other great Northern California organizations. Other general session and break-out session speakers are being finalized now.
WHAT IS INCLUDED
There will be a small registration fee (probably $35 for early-bird registrants). Once we finalize the agenda, we will launch a registration webpage. Attendance will be limited to the first 150 registrants. The symposium will run from 9am to 4pm. Registration and continental breakfast (with fresh fruit) will start at 8am. A delicious hot lunch will be provided (no more sandwiches!).
WHO IS INVITED
This event is for family or friends who care for someone with Parkinson’s Disease, Lewy Body Dementia, Progressive Supranuclear Palsy, Corticobasal Degeneration, Multiple System Atrophy, or atypical parkinsonism (also called Parkinson’s Plus).
This includes those who:
* live with someone with PD or parkinsonism, or
* consider themselves “care partners,” or
* have family members or friends with PD or parkinsonism, or
* give hands-on care, or
* manage someone’s care, or
* are concerned about a friend or family member, or
* provide psychological or practical support to someone with PD or parkinsonism.
Both current and former caregivers are welcome. A small number of spaces will be allotted to professional caregivers. We hope to offer CEUs.
One of the benefits of caregiver-only events is that caregivers can speak openly about the challenges associated with their role. This event is NOT open to anyone WITH one of those diagnoses. The exception is if someone with one of those diagnoses is/was also a caregiver to a person with one of those diagnoses.
If you have a neurological diagnosis and are reading this email, please pass this info along to the family members or friends who care about you! They need support too.
Given privacy concerns, we do not plan on videotaping this event.
IF YOU ARE INTERESTED…
In attending:
If you are receiving this email, you are on the Brain Support Network email list. All on this list will be notified when registration is open. Stay tuned…
In volunteering:
As with our 2012 symposium, Brain Support Network may provide most or all of the volunteers. Please email Steven Russell ([email protected]) if you’d like to volunteer at this event. (Steven is also BSN’s treasurer.)
COMING SOON…
More info will be available soon. When registration information is available, this webpage will be updated:
parkinsons.stanford.edu/cgr_events.html
In the meantime, please SAVE THE DATE — Saturday 7-12-14.
Robin