Caregiver’s Advice – “20 Lessons Learned the Hard Way”

A local Parkinson’s Disease (PD) caregiver support group member recently offered her highest recommendation for a book titled “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). We encourage you to buy it! Barbara authored five books before this one. She was a Parkinson’s care partner for over twenty years. Her latest book is “Advice from a Parkinson’s Widow.”

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Local support group member’s advice on items to have in place

Local support group member Joan’s husband recently passed away with Lewy body dementia.  This is a list of items she encourages families to consider before a loved one’s passing.  Some of the advice is specific to spouses.  A bit of the advice is California-specific. None of the advice is specific to Lewy body dementia.

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Exploring the Environmental Link to Multiple System Atrophy: A UCLA Study

Past research conducted in California has linked environmental factors to an increased risk of neurological diseases. However, the mystery deepens with Multiple System Atrophy, where few studies have investigated its risk factors. At UCLA, a study is underway aiming to understand different factors in the environment that may contribute to the development of MSA.

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