“How to Inspire a Dementia Patient to Shower” (Bob DeMarco)

This blog post may be of interest to those struggling to get someone with dementia to shower.

Many in the Alzheimer’s community will know of Bob DeMarco, who cared for his mother with AD. This July 2017 article is from Bob’s website, The Alzheimer’s Reading Room. Of course the suggestions offered apply to all types of dementia, not just Alzheimer’s. The full text is copied below.

There’s also an 11-minute podcast, which is basically Bob reading this article. On the YouTube page of the podcast, Bob lists several resources that “deepen the content” of the podcast/article. I’ve copied below those additional resources.

Robin

—————

www.alzheimersreadingroom.com/2017/07/how-to-inspire-a-dementia-patient-to-shower.html

How to Inspire a Dementia Patient to Shower
The Alzheimer’s Reading Room
By Bob DeMarco
July 17, 2017

Getting an Alzheimer’s patient to shower can be difficult. In order to accomplish this mission you will need to learn how to be a guide, how to use bright light, and how to use positive reinforcement.

Thousands of caregivers and dementia professionals have used these techniques and they work.

My mother usually resisted when I asked her to take a shower – for years. When she occasionally said something other than NO, I looked to the heavens as if it was a reward.

It took me quite a long time to figure out what to do and how to properly motivate my mom so she would take the shower without resistance.

 

1. Constant positive reinforcement about the positive effects of being clean.

My mother would usually take her shower around 3 in the afternoon. I gave up trying to get her to take her show in the morning because she wouldn’t do it.

During the course of the day I would start setting the stage for the shower early in the morning and throughout the day.

An hour before her shower, I would take my shower and then come out with my head still wet and my face clean shaven and start extolling how great it felt to be clean.

I would get my mother to touch my face and show her how smooth it was. As she was touching my face I would say – smooth a few times.

Eventually she would say smooth, or “smooth as a baby’s butt”. This would give both of us a good laugh.

I would also get her to touch my wet hair. Then I would say – clean. I would say clean a few times as she touched it.

I would then tell her how great it felt to be clean. Positive reinforcement about the virtues of being all nice and clean.

Please Note – This was designed to fix the idea of a shower in her brain. All of this was designed to set the stage for Dotty’s shower that was coming soon.

I was trying to set a pattern leading up to the shower, and then a specific pattern when it came time to take the shower.

Establishing patterns is one of the only ways I discovered that worked when it came to establishing consistent behavior with someone living with Alzheimer’s disease.

I am convinced that trying to do the same thing, at the same time, every day is very helpful in Alzheimer’s caregiving.

 

2. Prior to the shower I tried to make sure my mother was sitting in bright light.

I would sit her next to a window – in the kitchen usually do the trick. I learned that bright light can be mood altering when used effectively with dementia patients.

Put it this way – bright light, bright mom.

Before shower time, I always talked to and engaged my mother. I would resist the temptation to sneak up on my mother and then announce – time to take a shower. This doesn’t work, and it never worked for me.

Singing can be a good way of engaging a dementia patient and getting their attention. I learned my mother was always willing to sing Shine on Harvest Moon.

It became even easier after we obtained our repeat parrot Harvey. Now the three of us could sing together. This usually delighted Dotty.

I understand that Alzheimer’s patients often say NO when asked to take a shower. Sometimes my mother would say, “I already took my shower”. This was amusing because she was still sitting in her pajamas.

Rule to live by: Never correct an Alzheimer’s patient if they say they already took their shower.

Rule to live by: Never try to explain to them the importance of taking a shower – like good hygiene.

Ever hear the saying “loose lips sink ships”? Explanations and lots of words will sink your caregiving effort every time.

 

3. When it comes time to take the shower think of yourself as a guide.

You are going to guide your loved one to the shower by taking their hand. Of course, you will already have given them a nice smile, and received a nice smile back before you start to take action.

The weapons in your caregiver arsenal: the smile, your hand, and the most important of them all – positive reinforcement.

Here is one simple way to get someone living with Alzheimer’s to take a shower in my opinion. I learned this as a freshman in college in Psychology 101. Let’s call this Pavlov’s dog and the shower.

How to use the zinger. The shower must always lead to something the dementia patient wants or enjoys. In the case of Pavlov’s dogs they rang a bell when the dogs would eat. Eventually, they would just ring the bell and the dogs would salivate. This is known as a conditioned response.

When I got mom up for the shower I wouldn’t say a word. I would stick my hand out and wait for her to take it. And away we would go.

When she asked where we were going I would hold her hand and walk her toward the bathroom.

At this point I fire in the zinger. After you take your shower mom you will get a nice snack.

I usually said potato chips because they were her favorites. Positive reinforcement before the shower, BIG positive enforcement after the shower. For many of you, ice cream or chocolate should do the trick.

Two points here. One, mom gets the positive reinforcement after every shower, the reward so to speak – the potato chips or ice cream.

Two, I am involved with mom all the way. I don’t say you need a shower and then wait for her to go take the shower. I assist her right up to the door of the shower.

You have to be actively involved with a person living Alzheimer’s in everything they do. Once you get the hang of being actively involved you will find and learn – that it gets easier to guide your loved one and get them to do what you would like them to do.

Resist the temptation to be a parent. You are dealing with an adult with dementia, not a child.

Resist the temptation to be the boss. Instead be a guide and lead with a smile and your hand, palm turned up. Offer your hand to your loved one.

Always think positive and endeavor to find new and better ways to introduce positive reinforcement into the equation.

If you want your loved one to take a shower every day establish a pattern. Make sure the communication and activity leading up to the shower are positive and that you are engaged with the patient before guiding them.

Extol the virtues of being clean and how wonderful it feels. Get all happy about it – show your enthusiasm.

Make sure the immediate aftermath of the shower is positive. Use potato chips, or ice cream, or a trip out the door (this really worked well for me).

Don’t worry about being so happy you can’t see straight. Once you get this technique down you will be so happy you won’t believe what it feels like.

Don’t worry, you can do it. Might take some practice and patience, but it will happen.

 

List of resources on the YouTube page for the 11-minute podcast:

www.youtube.com/watch?v=myAG_rGIli4&feature=youtu.be

The following articles deepen the content available in the Podcast.

5 Tips How to get an Alzheimer’s Patient to Shower – http://bit.ly/RIKk4Q

Dementia care meet meanness with kindness – http://bit.ly/2u3qt4y

How to Change Patterns of Behavior in Alzheimer’s and Dementia Patients – http://bit.ly/2cfoh56

The Importance of Bright Light in Dementia Care – http://bit.ly/aoYGZg

Should you correct someone with dementia – http://bit.ly/2u3qt4y

How the Smile is a Powerful Communication Tool in Dementia Care – http://bit.ly/2fOBP59

Alzheimer’s Care Be a Guide – http://bit.ly/2j5ej5v

The Best Way to Find Solutions to the Problems that Caregivers Face Each Day – http://bit.ly/alzheimers-answers

 

“Role Reversal: Taking Care of Older Loved Ones” – Webinar Notes

Earlier this week, Fidelity hosted a webinar on the role reversal adult children caregivers experience in caring for their parents. Though focused on adult children caregivers, I think the webinar has lots of useful content for all of us.

A Fidelity estate planning specialist and a psychiatrist addressed these five topics:

– Having a series of conversations to identify the needs and desires of elder(s) in order to create a plan (or roadmap) toward achieving those goals.

– Consulting a legal advisor to learn what documents should be in place to ensure those desires are met.

– Consulting a financial advisor so you can plan in advance for where the elder(s) can afford to live.

– Anticipating the elder’s needs and making modifications to the current situation or moving the elder to someplace affordable, appropriate to his/her needs, and hopefully someplace he/she approves.

– Take care of yourself. Consider the personal and financial impact if you choose to do hands-on care.

Brain Support Network volunteer Denise Dagan attended the webinar and shares her notes (below). Fortunately it wasn’t a sales pitch for Fidelity.

Robin

**********************

Notes by Denise

Role Reversal: Taking Care of Older Loved Ones
August 16, 2017
Webinar Hosted by Fidelity

Role Reversal = They were there for you and now you need to be there for them.

The impact on caregivers is stress that impacts health, happiness and their financial situation.

 

Preparing for Care

You can’t gauge how long someone will live based on their parents’ longevity.

Best to have a conversation early about their finances, how they would like to be cared for, and to put all the necessary documents in place with instructions for family to follow when a parent dies.

Trying to have those conversations in the midst of a crisis just makes it more difficult.

Don’t think getting the necessary information and documents in place is a ‘one-and-done’ thing.

Start talking about it during natural gatherings, like holidays. Keep having those conversations until you have everything in place you will need.

Fidelity’s Aging Well Guide – More detailed information than this 1-hour webinar.

Fidelity’s Health Event Checklist – Pretty cool because you can download it and fill it in on your computer to document which documents you have completed and their location, and a summary of your care plan.

Fidelity’s Making Conversations Easier Booklet helps break down the overwhelming nature of the tasks.

1. Getting Grounded – What do you want to get out of the initial conversation? Where are you going with these conversations? Even people who do social work or are lawyers feel overwhelmed.

2. Get set – Specific conversations, even involving grandchildren, because it is a teachable moment. Approach these conversations as a family or team effort. Don’t give up if there is disagreement. Divide the tasks or research and come back together with new information to see if everyone can agree or compromise.

3. Get started – Pick a natural place to have a conversation that has no distractions, especially if you can find neutral territory. Involve distant participants through Skype or Google Hangouts. Verbalize your hope to put any family divides behind you by coming together to help a needy family member as a team.

Four Steps to Prepare:
1- Identify signals – unpaid bills, messy household, etc. are red flags they need help.
2- Push for autopilot – auto bill pay, etc.
3- Include both parents
4- Be part of meetings – meet their financial advisor, lawyer, but also neighbors and friends.

Key Documents:
* Power of Attorney – designates someone to be your health care proxy and/or legal proxy.
* Health Care Proxy – who has authority to make health care decisions for you if you are unable.
* Living Will – instructions for the health care proxy
* Will or Revocable Living Trust – an elder law attorney will help you know which is best for you.
* Documents you sign in the hospital only apply to that procedure and do not follow you forward, even at the same hospital.

Do all of these in advance. During a crisis is too late!

 

Managing & Paying

As soon as you finish one stack of paperwork, there’s another added to the pile.

Someone is ready for discharge from the hospital, but the family is unprepared to handle their care.

Do you have enough money to pay for care?

Where should an aging person live? Most people want to stay in their own home.

What would family have to sacrifice or give up in order to enable someone to remain in their own home?

You can put in your living will where you prefer to live.

Home Features for Added Safety:
– No-step entry
– Single Floor living
– Extra-wide doorways and halls
– Accessible electrical outlets

Build the cost or retrofitting a house for seniors or disability into a long-term budget.

Recognize that if you want to leave a financial legacy, you may be unable to do so.

Long-term care insurance considerations:
– Who are you buying the policy for? Consider the health spouse.
– Where are they likely to get care? Where do they want to live? Who’s going to provide that care?
– How will you fund long-term care insurance premiums as well as living expenses of the preferred location?

Continuing Care Communities combine standard living units with assisted living, memory units, and/or skilled nursing on one campus. It is ideal for spouses with very different care needs. Have a lawyer and financial advisor go over the cost/benefit of one of these places.

What about having elders move in with you?
– Maintaining privacy, grab bars, help with activities of daily living, etc.
– Many family members take this on themselves to the detriment of their own health and financial situation.
– You may be eligible for tax breaks if they qualify as a dependent.
– Flexible spending account may work for you. Talk with a financial advisor. It is not the same as a Health Savings Account.
– Does the care recipient qualify for veterans benefits?

Be aware of the stress you are taking on when you take in a loved one, especially if you are doing hands-on care, yourself. If you feel the stress talk to the care recipient, your doctor, your family, your religious leader. Brainstorm ways to relieve the stress for both caregiver and care recipient.

If you see the signs that your aging loved one need assistance, like unpaid bills, messy homes, body odor, etc. AND you don’t already have a plan in place, it is time to begin addressing the most urgent need first. Carve out some time to talk about those priorities and how they would like to handle it. It might be a private or a family meeting. This is the time you need to have (or get) your documents in place, before their ability to participate slips even further.

Know what documents your family member has already done. Where are those documents, who helped prepare them? Go meet the people who have helped put those documents together. It would be best to create a letter of instruction and suggestions for your inheritors to know where everything is and what to do in what order after you die. Hand it to your inheritors to be opened after you die.

Build the plan proactively. Done in an emergency they are not well thought out and are usually more expensive.

Understand Medicare doesn’t pay for long-term care, and never pays for lodging except in skilled nursing. Often, this leaves the well spouse bankrupt because they did not financially plan in advance and understand what their expenses will be in their elder and unwell years.

 

Taking Care of Yourself

Having others you can rely on, talk to, help make decisions with are really helpful.

Find some time for yourself every day to feed your own needs (nutrition, exercise, sleep, relaxation).

If your own health declines, you cannot be available to care for someone else.

More and more millennials are taking care of elders which often means leaving full time work, passing up promotions, depleting 401K contributions.

Caregiver burnout is a real thing that damages your health, when demands overwhelm your resources with respect to your energy and time. Who is the likely person to take over for you, but sometimes they live far away. They can still help financially, or by taking the time to find you local resources. Be sure to include some reserves in your financial plan for someone to step in if/when the primary caregiver becomes unavailable.

Be sure to have your elder sign a HIPAA form so you can have access to their medical information when they become unable to explain their medical circumstances, personally.

Getting all these things in place are also teachable moments for the youngest generation in your family.

Use these conversations as a way to connect with your elder, share family stories, what they want their legacy to be, etc. It can really bring families together when they take this good side with all the hassle and frustration of arranging documents and putting a plan in place.

 

Wrapping Up

Key:
– Take time to listen
– Ask, don’t assume
– Lean into your own well being
– Know your resources

Think broadly about getting documents together, not just about the unwell person but their well dependents.

Build a roadmap to ensure there’s a plan in place. No plan is perfect, but it guides you when things come up.

Have the conversation to tell people what you’ve done and where to find things

Take stock of who’s “family”? Who might come to depend on you and who do you depend on?

Identify documents and gaps
Put a team together to fill those gaps
Put the emergency plan in place.

Fidelity has documents and resources they recommend to address both financial and long-term care plans.

“A Stranger in My House? No Way!” (when someone refuses care)

Seniors At Home is a home care agency in the San Francisco Bay Area. Here’s a good article about talking to an older adult who refuses care:

How to Talk to an Older Adult Who Refuses Care
“A Stranger in My House? No Way!”
Seniors At Home
The article details “eight strategies you can use to navigate tough conversations if there is a resistance”:

1.  Be prepared

2.  Normalize aging and the need for care

3.  Address fears and concerns

4.  Focus on the positive

5.  Share your concerns

6.  Start small

7.  Stick with it

8.  Bring in a professional

Robin

Stanford/BSN Webinar – Diagnosing PSP, Wed, Aug 30, 2-3pm PT – Register Now!

Brain Support Network is kicking off a webinar series with Stanford Movement Disorders Center, one of our Northern California partners.

Join us for a free, one-hour webinar on diagnosing progressive supranuclear palsy (PSP). The speaker is Stanford movement disorders specialist Kathleen Poston, MD. Please spread the word!

****************

Diagnosing Progressive Supranuclear Palsy

When: Wednesday, Aug 30, 2017
2-3pm Pacific Time (US and Canada)

Speaker: Kathleen Poston, MD, MS, movement disorders specialist, Stanford Movement Disorders Center

Register in advance for this webinar:

https://stanford.zoom.us/webinar/register/d19798267307ba908c34be5db4a05ad8

After registering, you will receive a confirmation email containing information about joining the webinar.

Note: If you can’t make it on August 30th, we encourage you to register for the webinar so that you will be alerted when the recording is available online.

****************

Further details on the webinar topic:

Dr. Kathleen Poston, a movement disorder specialist with extensive experience with PSP, will address these topics:

* how is PSP diagnosed?
* how many years does the average person wait for a diagnosis?
* what are the two main types of PSP?
* what’s the new diagnostic criteria for probable PSP?
* what’s the accuracy of a PSP diagnosis?

There will be time for audience questions on PSP.

****************

Further details on the speaker:

The speaker is Dr. Kathleen Poston, a movement disorders specialist at Stanford University. Dr. Poston research focuses on the development of novel neuroimaging biomarkers to improve diagnostic accuracy and monitor the efficacy of investigational treatments for Parkinson’s Disease and other movement disorders, such as PSP. She is the co-investigator for the NINDS-funded Udall Center of Excellence for Parkinson’s Disease Research.

****************

Further details on the webinar host:

The webinar will be hosted by Robin Riddle, who coordinates a Parkinson’s Information & Referral Center at Stanford. She is also the CEO of Brain Support Network, a nonprofit focusing on the four atypical parkinsonism disorders, including PSP.

Brain Support Network is organizing a research update and family conference on Progressive Supranuclear Palsy and Corticobasal Degeneration on Saturday, October 28th, in the San Francisco Bay Area. To be notified when registration opens for this conference, please join the PSP email list.

****************

Register in advance for this webinar:

https://stanford.zoom.us/webinar/register/d19798267307ba908c34be5db4a05ad8

****************

Questions? Please contact Robin Riddle.

“How to Take Care of Others Without Burning Out”

There’s a good article in Monday’s TIME Health on avoiding caregiver burn-out.

To avoid burn-out, we’re told that self-care is critical. “The question is: What does self-care look like, and how much of it do we need? As it turns out, the trick is to be other-focused and kind, but to balance that with taking care of yourself as well.”

The article lists three “practices” to help you find that balance:
* self-compassion
* social connection
* empathy and compassion

The article ends with this advice:

“Self-compassion, social connection, and empathy are powerful forms of self-care—but that doesn’t mean that traditional self-care activities have no place in our lives. Keeping your spirits up with exercise, sleeping in and making room for fun activities like movies or shopping are important. These pleasures give us short bursts of happiness that can help fuel us and keep us playful in life. To complement these more physical pleasures, however, giving and connecting with others in positive ways will bring us long-lasting feelings of joy that come from a life of purpose and meaning.”

Here’s a link to the full article:

time.com/4886913/how-to-take-care-of-others-without-burning-out/

Mental Health/Psychology
How to Take Care of Others Without Burning Out
Emma Seppälä
Aug 07, 2017
TIME Health

Robin

 

“Even healthy people need a living will, but many people don’t want to think about it”

This is a good article from today’s “Washington Post” (washingtonpost.com) on why people may not complete a living will. The author makes the point that even if you don’t have a living will, everyone (healthy or not) should designate in writing a healthcare proxy and, ideally, have a discussion with the proxy about end-of-life wishes.

Here are some excerpts from the article:

* Even though advance directives have been promoted for nearly 50 years, only about a third of U.S. adults have them, according to a recent study. People with chronic illnesses were only slightly more likely than healthy individuals to document their wishes.

* “Many people don’t sign advance directives because they worry they’re not going to get any care if they say they don’t want” cardiopulmonary resuscitation, said the study’s senior author, Katherine Courtright, an instructor of medicine in pulmonary and critical care at the University of Pennsylvania. “It becomes this very scary document that says, ‘Let me die.'”

* That’s where the health-care proxy comes in. Just naming someone isn’t enough, though. To be effective, people need to have conversations with their proxy and other loved ones to talk about their values and what matters to them at the end of life.

The full article is worth reading:

www.washingtonpost.com/national/health-science/even-healthy-people-need-a-living-will-but-many-people-dont-want-to-think-about-it/2017/08/04/121f99ac-76d3-11e7-8f39-eeb7d3a2d304_story.html

Even healthy people need a living will, but many people don’t want to think about it
By Michelle Andrews
Washington Post
August 7, 2017 at 7:00 AM

Robin

 

BSN’s Allan Marcus Fund Gave Six Grants in 2017

The Allan Marcus Fund for Families in Need with PSP has successfully completed its giving for 2017.  The Marcus family and Brain Support Network (BSN) approved six grants to families with loved ones with progressive supranuclear palsy (PSP).

The grants to PSP families provided in-home caregiving, travel to family reunions, needed physical therapy, and more.  Congratulations to all the families in the US who received grants.  It was an honor to hear your stories and help make what we hope will be precious memories.

The Marcus family aims to provide this fund annually.  Please join BSN’s PSP email list to be kept informed as more information is available in the new year.

“Five Tips for Care Partners”

Here’s an infographic of the American Parkinson Disease Association’s (apdaparkinson.org) “Five Tips for Care Partners”:

org2.salsalabs.com/o/5693/images/apda_infographic.pdf

In short, the five tips are:

* Manage your stress
* Keep your own needs in mind
* Be realistic
* Take a break
* Accept changes

Certainly these five tips apply to all caregivers, not just Parkinson’s caregivers.

Most of the infographic is copied below but it’s much nicer to read online!

Robin

———————

FIVE TIPS for Care Partners
American Parkinson Disease Association

1. Manage your stress
Consider how stress affects your body stomach aches, high blood pressure) – and your motions (overeating, irritability). Find ways to relax.

2. Keep your own needs in mind
You are the emotional support of your loved one. But, you also need someone to support your emotional needs. Talk openly and honestly with a friend or another loved one. It is important to know you are not alone and that someone else somewhere is in a similar situation that you are.

3. Be realistic
The care you give does make a difference, but many behaviors can’t be controlled. Grieve the losses and focus on the positive times as they arise.

4. Take a break
As a care partner, it will be important for you to continue with your personal social life, exercise regularly and eat healthy. Don’t try to do everything for your loved one. If possible, allow him/her to do some daily activities on their own. This will allow you a break and it will allow him/her to be reassured that they do not need help with everything.

5. Accept changes
Eventually your loved one will need more intensive kinds of care. Research care options now so you are ready for the changes as they occur. There will be many transitions throughout the Parkinson’s journey, such as moving from a walker to a wheelchair. Don’t be afraid to ask for and accept help from your doctor, APDA, or your friends and family. Asking for assistance is a positive step for you.

 

“Caregiving Is Hard Enough. Isolation Can Make It Unbearable.”

This article from yesterday’s New York Times “New Old Age” Blog is about caregiver isolation. Here are key excerpts from the article:

* Like so many caregivers, [Ms. Sherman-Lewis] has discovered that along with the abandoned career, the hands-on tasks, the medical scheduling, the insurance tussles and the disrupted sleep, she faces another trial: social isolation.

* “Caregiving is done with a lot of love and affection, but there’s a lot of loss involved,” said Carey Wexler Sherman, a gerontologist at the University of Michigan Institute for Social Research. “People talk about friends disappearing, about even family members not wanting to be involved. It’s a lonely business.”

* Sometimes, caregivers isolate themselves.

* Yet a habit of avoiding others — or watching them avoid you — collides with a growing body of research showing how damaging isolation and loneliness can be. They are associated with a host of ills, including heart disease and stroke. Among older people, isolation is linked to depression, even higher mortality. Lonely old people, Dutch researchers have found, are more apt to develop dementia.

* “The support is what leads to less stress, less depression, better health and delayed nursing-home admissions,” Dr. Mittelman said. Interestingly, her team has found that “instrumental support,” in which others actually help with tasks, has less impact than emotional support. “Having someone outside who is paying attention and who cares is more important,” she said.

* “Don’t invite me for lunch — you know I can’t go,” Ms. Sherman-Lewis said. “Just bring a pizza and a bottle of wine and come by.”

The full article is worth reading:

www.nytimes.com/2017/08/04/health/caregiving-alzheimers-isolation.html

Health | The New Old Age
Caregiving Is Hard Enough. Isolation Can Make It Unbearable.
by Paula Span
The New York Times
Aug. 4, 2017

Robin

Aug 2017 Parkinson’s Support Group Mtgs – Guest Speakers – NorCal + Central CA

Here’s a list of guest speakers at many Northern California and Central California Parkinson’s Disease (PD) support group meetings for August 2017.

With my Brain Support Network atypical parkinsonism (DLB, PSP, MSA, CBD) hat on, these meetings are especially appealing to me (because of the guest speakers or topics) BUT remember that these are PD support group meetings:

* Visalia, Friday, 8/4 – Movement disorder specialist Jeri Williams, MD, will be speaking about psychosis (hallucinations and delusions) in Parkinson’s Disease. This talk certainly applies to Lewy Body Dementia. Note that this talk is sponsored by a pharmaceutical company.

* Palo Alto/Avenidas, Wednesday, 8/9 – A great speaker from Home Instead Senior Care will be addressing senior care options, hiring in-home aides, and best practices at home (protecting yourself and your belongings). There is nothing Parkinson’s-specific about this talk. And it’s not a sales pitch.

* Santa Rosa, Saturday, 8/12 – Movement disorder specialist Maya Katz, MD, will focus on hospitalization and drug interactions.

* Yuba City, Monday, 8/14 – A speech therapist will speak about communication and swallowing issues in PD

* Auburn, Tuesday, 8/15 – A clinical psychologist will be addressing sleep issues and insomnia management in PD

* Walnut Creek, Saturday, 8/19 – A panel talks about medical marijuana and PD. Certainly this talk applies to our community.

* Fremont, Monday, 8/28 – A physical therapist discusses physical therapy for PD

Generally, I recommend driving no more than 30 minutes to attend any of these meetings. If you attend a meeting and learn anything, please share with me so that I can share with others!

Do you need to know the support group meeting location, day/time, contact info, and how to RSVP if required? Please refer to the Stanford Parkinson’s website for all Northern and Central California support groups:

parkinsons.stanford.edu/support_groups.html

As always, I’ve deleted the deep brain stimulation-related talks.

Robin
———————————

Placerville
Tuesday, 8/1, 1:30-3pm
Discussion Topic: What special attention is needed by those with PD while traveling to/from holiday vacations and events
RSVP?: No.

 

San Jose/Willow Glen
Friday, 8/4, 10am-noon (speaker starts about 10:20am)
Guest Speaker: Laurice Yang, MD, movement disorder specialist, Stanford Neurology
Topic: Updates in PD treatment
RSVP?: No.

Visalia
Friday, 8/4, 10:30am-noon
Guest Speaker: Jeri Williams, MD, movement disorder specialist, private practice, Bakersfield
Topic: Treating psychosis in PD
RSVP?: No.

Bakersfield
Tuesday, 8/8, 2-4pm
Guest Speaker: Betsy Koznin, RN
Topic: Apokyn
RSVP?: Yes to group leaders Linda Feist, 661-304-9227, or Bill Burgemaster, 661-343-2707

Pacific Grove (Monterey County)
Tuesday, 8/8, 3-4:30pm
Guest Speaker: Henry Marquez
Topic: ADA compliant model
RSVP?: No.

Palo Alto Young Onset Parkinson’s
Tuesday, 8/8, 6:30-8pm
Guest Speaker: Katie Parafinczuk, DPT, physical therapist, Kaiser Redwood City, and PD exercise instructor
Topic: Parkinson’s exercise
RSVP?: Yes, if this is your first time attending. Please RSVSP to Martha Gardner, group leader, [email protected], by August 7th.

Palo Alto/Avenidas
Wednesday, 8/9, 2-3:30pm
Main Speaker: Nikki Hochhauser, Home Instead Senior Care, Peninsula
Topics: Senior care options, hiring in-home aides, and best practices at home (protecting yourself and your belongings)
RSVP?: No.

Sonoma/Vintage House
Thursday, 8/10, 10-11am
Guest Speaker: Colleen Fisher, National Parkinson Foundation, Bay Area
Topic: Community programs and resources
RSVP?: No.

Stockton
Thursday, 8/10, 1:30-3pm
Discussion Topics: How are your medications working for you? What do you need to tell the doctor?
RSVP?: No.

Los Altos Young Parkinson’s
Saturday, 8/12, 10am-noon
Guest Speaker: Aura Oslapas
Topic: Application under development for those with PD
RSVP?: No.

Santa Rosa (Sonoma County)
Saturday, 8/12, 1-3:15pm (speaker from 1-2pm)
Guest Speaker: Maya Katz, MD, movement disorder specialist, UCSF and San Francisco VA
Topics: Hospitalization and drug interactions
RSVP?: No.

Yuba City (Tri-Counties)
Monday, 8/14, 1-2pm
Guest Speaker: Amber Smith, SLP, speech therapist, Fountains Skilled Nursing Facility
Topic: Communication and swallowing issues in PD
RSVP?: No.

Gilroy
Monday, 8/14, noon-1:30pm
Program: Panel of group members discussing various stages of PD
RSVP?: No.

Lincoln
Tuesday, 8/15, 10-11am
Guest Speaker: Tuan Nguyen, pharmacist, Lincoln Pharmacy
Topics: Medications and interactions for those with PD
RSVP?: No.

Auburn
Tuesday, 8/15, 1:30-3pm
Guest Speaker: Eric Egli, PhD, clinical psychologist, Roseville
Topics: Sleep issues and insomnia management in PD
RSVP?: No.

Hollister
Friday, 8/18, 1:30-3:30pm
Discussion Topic: Importance of water in PD
RSVP?: No.

Walnut Creek (Mt. Diablo)
Saturday, 8/19, 9am-noon (panel 10:45am-11:45am)
Panelists: Eloise Theisen, RN, founder, Green Health Consultants, and Rebecca and Tim Byers, co-founders, Agathist Collective
Topic: Medical marijuana and PD
RSVP?: No.

Fremont
Monday, 8/28, 7-9:30pm
Guest Speaker: Priti Chitale, PT, physical therapist, Kaiser San Leandro
Topic: Physical therapy for PD
RSVP?: No.