“Lewy Body Dementia: Future Directions” Webinar – Join us on April 17, 1pm PT
Brain Support Network and Stanford’s Movement Disorders Center are pleased to present Stanford’s Carla Abdelnour, MD, speaking on “Lewy Body Dementia: Future Directions,” on Thursday, April 17, 1pm PT. Dr. Abdelnour’s talk will focus on recent research findings and future research that may affect treatment of those with LBD. She will provide a short overview of Lewy body dementia (LBD), which is an umbrella term that includes Parkinson’s Disease Dementia and Dementia with Lewy Bodies.
LBD Caregivers: Unique Challenges – 3/12, 11am PT webinar
Join for an exploration of the challenges faced by caretakers of those living with PD and LBD and a discussion on how to best support these individuals.
Wednesday, March 12th, 11:00am
12:00pm MT / 1:00pm CT / 2:00pm ET
About The Speaker:
Jori Fleisher, MD, MSCE, is a fellowship-trained, movement disorders neurologist with a special interest in understanding the needs of individuals and families who are living with advanced Parkinson’s disease and related disorders. She also has a special interest in designing new models of care to better serve this population.
UCSF Sleep Researcher Speaks to Local PSP Support Group
UCSF’s Christine Walsh, PhD, joined the Brain Support Network local PSP support group on Sunday, March 9, 2025, where she talked about sleep issues in PSP. Dr. Walsh wants to improve the quality-of-life for those with PSP and their care partners, as well as identify a sleep-based biomarker for PSP.
NYT: How to Care for a Loved One With Dementia: 5 Expert Tips
Excerpts: “The details of [actor] Gene Hackman’s final days may never be known. But officials in Santa Fe, N.M., said on Friday that it appeared that Mr. Hackman, who had advanced Alzheimer’s…, had spent about a week alone after his wife, who was his caregiver, died at home of a rare viral infection. … Laura N. Gitlin, a behavioral scientist at Drexel University…, said that when a patient is diagnosed with dementia, their loved ones rarely receive all the information they need. ‘No one really explains to the family what the course of the disease may look like, how to prepare,’ she said. ‘No one checks in on the caregiver.’ … Here are five tips to consider if you become a caregiver for a loved one with dementia.” The tips including staying social; setting up a caregiving team; seeking help from an expert such as a geriatric social worker; considering technology that can help monitor your loved one; and practicing self-care. More the full article here.