Preventing Burnout for the Dementia Caregiver Webinar

FCA’s August Webinar: Preventing Burnout for the Dementia Caregiver

When: Wednesday August 29, 11 a.m. to 12 noon (PT)
Where: ONLINE
Cost: No charge
Contact: Calvin Hu, [email protected], (415) 434-3388 x 313
Registration: Click here

Any kind of work, regardless of how enjoyable or personally meaningful it may be, can lead to burnout. And, it is well-documented that the stress of caregiving, especially without respite or a predictable conclusion, often leads to health problems, including depression and cardiovascular disease. Quality of life and the ability to care for a family member or friend can be at risk. At the same time, caregivers often view self-care, hobbies, and enjoyment of pastimes as inaccessible or as an unnecessary indulgence. Preventing Burnout for the Dementia Caregiver will help caregivers understand the importance of self-care and how it can foster positive caregiving experiences, without burnout. Strategies for guilt-free, self-care will be discussed.

Objectives:

  • Learn about the concept of burnout as a predictable result of certain patterns of experience
  • Learn how burnout affects dementia caregivers’ health, well-being, and capacity to provide care
  • Identify strategies for preventing burnout and improving care

 


About the Speaker: Daniel Paulson, PhD

Dr. Daniel Paulson is an assistant professor in the Department of Psychology at the University of Central Florida. His primary clinical interests include caregiving and dementia evaluation of older adults. He completed his Bachelor’s degree in psychology at Virginia Tech in 2002 and his Master’s degree in Psychological Sciences from James Madison University in 2005. He then moved to Detroit where he completed the Ph.D. program in Clinical Psychology at Wayne State University. His graduate training was supported in part through an NIH T-32 award in Aging and Urban Health at the Institute of Gerontology. He went on to complete the clinical neuropsychology pre-doctoral internship program at the Medical University of South Carolina before moving to Orlando. As a faculty member at UCF, Dr. Paulson teaches in the Clinical Psychology Ph.D. program and directs the Orlando Later-Life Developmental Research Lab (OLDeR Lab) where his research focuses on both dementia caregiving and late-life depression.

Aug 2018, Speakers at Parkinson’s Support Group Meetings, Northern/Central Calif

In August 2018, some Parkinson’s support group meetings in Northern and Central California have guest speakers that may be of interest to those in the Brain Support Network community:

San Jose/Willow Glen
Friday, 8/3, 10am-noon (speaker begins about 10:15am)
Guest Speaker: Harvey Sackett, Esquire
Topic: Filing for Social Security disability benefits with a PD diagnosis
RSVP?: No.

Half Moon Bay
Friday, 8/3, 1-2pm
Guest Speaker: Jetta Van Hemert, PT, physical therapist, Half Moon Bay Senior Center
Topic: Rosen method and exercise for Parkinson’s
RSVP?: No.

San Andreas (Calaveras County)
Tuesday, 8/7, 10am-noon (speaker usually begins at 10:30am)
Guest Speaker: Bailey Freitas, SLP, speech therapist, Sonora Regional Hospital and other places
RSVP?: No.

Placerville
Tuesday, 8/7, 1:30-3pm
Program: Watch “Freezing or Sweating Falls When Walking with PD” webinar from the Parkinson’s Foundation
RSVP?: No.

Menlo Park/Little House
Wednesday, 8/8, 2-3:30pm
Guest Speaker: Ellen Corman, director, Stanford’s Farewell to Falls Program
Topic: Fall prevention in Parkinson’s
RSVP?: No.

Santa Rosa (Sonoma County)
Saturday, 8/11, 1-3:15pm (speaker from 1-2pm)
Guest Speaker: Diana Partovi, neuropsychologist, VA
Topic: Managing cognitive changes in Parkinson’s
RSVP?: No.

Tracy
Monday, 8/13, 10am-noon
Program: Dance for Parkinson’s demonstration class led by Rose, Dance for Parkinson’s representative
RSVP?: No.

Pacific Grove (Monterey County)
Tuesday, 8/14, 3-4:30pm
Guest Speaker: Jennifer D’Attilio, SLP, speech therapist
Topic: Parkinson’s Voice Project
RSVP?: No.

Palo Alto YOPD (Young Onset PD)/Stanford
Tuesday, 8/14, 6:30-8pm
Guest Speaker: James Lu, DPT, LAc, acupuncturist, Zhu’s Neuro-Acupuncture and Rehabilitation Center, San Jose
Topic: Scalp acupuncture for PD
RSVP?: Yes, if this is your first time attending. Please email group leader John Mamin, [email protected]

For meeting location and other details, see the Stanford Parkinson’s Outreach website.

 

“Watch Out for These Hidden Costs of Assisted Living” (Samada.com)

This is a terrific article on the *possible* “hidden costs” of assisted living.  It’s terrific because it is very detailed, listing all kinds of costs.
Robin
———————–
Watch Out for These Hidden Costs of Assisted Living

Here are additional charges that may not be included in the basic fee
By Kaya Laterman
Samada.com
May 2, 2018

Once you or loved one has made the decision that assisted living would be a good move, the next question is usually: How much will it cost? The national median cost for assisted living is $3,750 per month, but prices vary widely from state to state and facility to facility.

The way assisted living facilities break down their costs also differs from facility to facility. Many residences charge a basic fee, which includes rent, meals, housekeeping, access to activities and exercise. Then they will group additional services, like therapies and medication disbursement, into different payment tiers. Other facilities consider themselves all-inclusive, but may have add-on fees, which can increase a monthly bill by several hundred or even thousands of dollars.

Some facilities, after a periodic assessment, may either try to bump a resident’s payment plan up a tier or start charging more for added services. You are entitled to contest the additional services and fees as long as you can prove they are not needed, which may require the assistance of a geriatric care manager, social worker or other professionals who can attest to that.

It’s important to read the contract carefully and make sure the costs of all services are clearly indicated. Services that may incur additional fees can include:

Hygiene Costs

* Dressing. Fees can be split for dressing in the morning and undressing in the evening.
* Bathing. Fees may be different for full help with showering or having someone in the room while the individual showers.
* Bathroom/incontinence care. Some individuals may need help getting to and from the bathroom, sitting and standing, wiping, and changing adult diapers.
* Laundry

Medical Costs

* Health screening before moving in. Some facilities include this in their overall pricing upon move-in, but others many indicate it on the bill as a separate one-time charge.
* Medication management. Depending on the needs of the resident, staff may simply remind a resident to take his or her daily dosage, while other facilities will store and administer medications and record medication disbursement.
* On-site pharmacy or doctor access. Does the facility have a doctor or pharmacy onsite? You may be charged an additional fee for the convenience, disguised as a monthly “facility fee.” However, the services the doctor renders or the price of the prescription may be covered by Medicare or Medicaid.
* Treatment for temporary wounds or illness. Some facilities will tack on an additional fee for cleaning out and monitoring wounds from a fall or helping a resident get over a long-lasting flu.
* Blood pressure monitoring
* Blood glucose monitoring and insulin injections

Mobility and Other Care Costs

* Escort to and from the dining room or activity center
* Checking in on resident at regular intervals
* Reminders. This may include reminders to go to the bathroom every few hours or before bed, to take medication or to get to weekly activities and therapies on time.
* Use of gym or spa, if available on premises
* Transportation to area shops, doctor’s office
* Admission/Discharge. A one-time admissions fee may show up on bills under names like Service Initiation Fee or Community Service Fee. Also, look at the fine print in the contract for discharge policies to make sure you are entitled to a refund for prepaid services that were not used.
* Extra fee to deep-clean the bathroom. Hard to believe, but although most cleaning services are part of a standard monthly charge, some facilities may add on a deep-cleaning charge from time to time.
* Telephone

Other Hidden Costs

These are costs that aren’t charged by the assisted living facility itself, but ones that you or a loved one might incur as part of the transition to assisted living.

* Moving costs. Includes hiring a junk removal service, paying for movers and/or the costs involved in selling a house
* Travel expenses
* Lawyer or elder care manager fees

Kaya Laterman is a freelance reporter based in Brooklyn, N.Y.

“Sometimes Patients Simply Need Other Patients” (NYT)

This is a good article on the value of online patient groups:

www.nytimes.com/2018/07/09/upshot/sometimes-patients-simply-need-other-patients.html

The New Health Care
Sometimes Patients Simply Need Other Patients
Using the internet for a diagnosis is not recommended, but there’s great power in sharing stories.
By Aaron E. Carroll and Austin Frakt
The New York Times
July 9, 2018

Brain Support Network has a list of online groups for those coping with Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, and corticobasal degeneration.

 

Our 15th year of caregiver-only support group meetings

Tonight, Brain Support Network is starting its 15th year of holding caregiver-only support group meetings for those dealing with Lewy Body Dementia, Progressive Supranuclear Palsy, Multiple System Atrophy, and Corticobasal Degeneration. Thanks to all of our volunteers for making possible this milestone.

We meet nine times a year in San Mateo. Let us know if you’d like to be added to our support group meeting reminder email list.

Eleven things “they don’t tell you about dementia” (Dementia Journey)

When Laurie Scherrer was diagnosed with early onset Alzheimer’s and frontotemporal dementia, she was told several things by doctors, including advice that she should get her affairs in order.  She writes about the eleven things she wished the doctors had said, including the idea that she could reduce confusion and agitation by observing triggers.

dementiajourney.org/2018/07/10/5589/

“Tips for taming caregiver stress” (Harvard)

Harvard Medical School sends out emails (health.harvard.edu) on various medical topics, mostly as a way to sell their books. I received an email this morning from Harvard on the topic of caregiver stress, describing these eight tips for “taming caregiver stress”:

* Relaxation response techniques and nurturing techniques are vital.

* Protect your own health.

* Join a support group to talk out frustrations with other people in your situation and to get helpful ideas.

* [Share] the work, instead of taking on everything yourself.

* When someone offers help, accept.

* Accept that circumstances change quickly.

* Accentuate your spiritual connectedness to something greater than yourself, be it to God, community, or the natural world.

* Remember that you’re doing this not solely out of obligation.

Harvard’s email also provides some useful resources. The email is copied below.

Harvard says:

“While some stress is inevitable, when your body
repeatedly encounters a set of physiological changes dubbed the stress response, trouble can brew. Stress may contribute to or exacerbate various health problems. But it’s possible to dismantle negative stress cycles [by knowing how to] identify your stress warning signs and…better manage stressful situations.”

Robin

—————————————–

Tips for taming caregiver stress
Harvard Medical School
July 7, 2018

Caring for others fulfills a basic social contract in ways that can
draw generations and individuals closer. Certainly, caring for an elderly parent or ailing spouse or partner is a worthy, often
satisfying pursuit. But it isn’t easy. If you’re among the  estimated 66 million Americans acting as caregivers for friends, family, or neighbors, you may often wrestle with stress as well as exhaustion, anger, guilt, grief, and other emotions.

Two-thirds of these caregivers are women. The task is especially hard on women in the so-called sandwich generation, who are simultaneously caring for children and older parents, quite possibly while working outside the home, too.

While you attend to the needs of others, your own sense of well-being may head south. Studies of men and women responsible for the long-term care of relatives show higher rates of illness, suppressed immune response, slower healing, and even earlier death among caregivers.  Additionally, research reveals that ongoing stress endured by older
adults caring for spouses with Alzheimer’s disease has a negative impact on the caregiver’s own mental functioning.

In order to give care to others, you need stress relief, support, and time for yourself and your family. Theses “Tips for taming caregiver stress” may help.

* Relaxation response techniques and nurturing techniques are vital. Practicing them often will enable you to feel calmer, happier, and better able to help others. If it’s too hard to find the time, consider getting extra help with some household tasks. The Eldercare Locator at www.eldercare.gov can help you find varied services for older adults and their families; it’s run by the Administration on Aging. The Rosalynn Carter Institute for Caregiving, at www.rosalynncarter.org, also provides recommendations for evidence-based caregiver support programs.

* Protect your own health. Research suggests that a caregiver’s immune function is often suppressed by the stress of caring for others. Boost your resistance by eating well, getting enough rest and exercise, and pursuing activities that bring you pleasure. Take advantage of regular respite care from professionals, family, and friends to give you much needed breaks.

* Join a support group to talk out frustrations with other people in your situation and to get helpful ideas. Some caregiver support groups are available online (such as a nationwide chat group run by AARP). Others are run by local hospitals, senior centers, and community groups.

[Robin’s note: I think these AARP caregiving forums are what Harvard describes as a “chat group” —
https://community.aarp.org/t5/Caregiving/ct-p/Caregiving ]

* A blend of assertiveness and cognitive restructuring skills can help you share the work, instead of taking on everything yourself. Spell out to other family members what needs to be done and what sort of help would be best. If no one offers help, ask for it. Linking those who can lend a hand has gotten much easier with new websites and apps that help friends, family, and communities coordinate care. Another example of a helpful site is CaringBridge (www.caringbridge.org).

* When someone offers help, accept. Keep handy a list of small tasks people can do, such as calling regularly, cooking an occasional dinner, shopping, and running errands. You can dole out tasks or ask people to check off what they can do.

* Accept that circumstances change quickly. Periodically reassess what you can offer and what assistance you need. If it’s getting too hard to fulfill certain needs, ask family members for help or consider other options, such as hiring paid caregivers to take on these tasks. Consult a geriatric care manager (www.aginglifecare.org) or social worker for help; your local council on aging or visiting nurse association should be able to help you find one. If necessary, consider another living arrangement that would help you meet your needs and those of your loved one.

* Accentuate your spiritual connectedness to something greater than yourself, be it to God, community, or the natural world.

* Remember that you’re doing this not solely out of obligation.
Focusing on the love you hold for your loved one can help dial back stress when things become frustrating and overwhelming.