Advance Care Directive for Dementia (New York Times article)

This recent New York Times (nytimes.com) article is about the idea that the typical advance care directive doesn’t say much about dementia.  A physician recently developed a dementia-specific advance directive, which you can find here:

* Advance Directive for Dementia, dementia-directive.org

Two other resources are referred to in the article —

* The Conversation Project, theconversationproject.org
* Prepare for Your Care, prepareforyourcare.org

(I have previously posted about those resources.)

Here’s a link to the full article:

www.nytimes.com/2018/01/19/health/dementia-advance-directive.html

One Day Your Mind May Fade. At Least You’ll Have a Plan.
by Paula Span
The New Old Age/The New York Times
Jan. 19, 2018
Robin

Seven tips for (Parkinson’s) caregivers

Recently I came across this article of tips for Parkinson’s caregivers. It was written in 2015 by a social worker with the Muhammad Ali Parkinson Center (MAPC) in Phoenix. Except for suggesting that readers contact a social worker at the MAPC, there is nothing Parkinson’s-specific about these tips.

The seven tips include:

1. Don’t compare yourself to someone else.
2. Evaluate your self-talk.
3. You do not have to do everything yourself.
4. Listen to those who know you best.
5. If you recognize that there needs to be a change, act on it.
6. Seek help from others to make a plan.
7. Be agreeable to change your plan.

Robin


www.barrowneuro.org/assets/winter-2015.pdf

Tips for the Caregiver
Nancy Bivins, LMSW
Southwest Parkinson News
Winter 2015

Following the diagnosis of Parkinson’s disease, as the care partner, you will find that your role changes over time. You may, for instance, need to assume the task of writing checks if your loved one has a tremor and writing is difficult. Taking on that responsibility is relatively easy and life goes on with little or no lifestyle disruptions.

As the disease progresses, the amount of assistance that is needed will also change. You will find that as needs increase, responsibilities and tasks are shifted to the most logical person, you. You may be the spouse, adult child, significant other or friend, but whatever your relationship, you are the most important person in the life of the person living with PD (PLWP).

This shifting of responsibilities is a gradual process and it is easy to understand that over time you may become overwhelmed without realizing what is happening to you. If you find that you are having feelings of needing help to manage, please consider the following tips.

1. Don’t compare yourself to someone else. We certainly can learn techniques and strategies to cope with stress, but keep in mind that we are all wired differently. Some are naturally nurturing and patient, while others find it difficult. Also, care partners may have health issues of their own. Just because others are managing in a particular way does not mean that you must do the same.

2. Evaluate your self-talk. If you find yourself thinking or saying phrases like, “I’m exhausted,” or “I can’t go another day,” it is time to make some changes. Listen to what you are saying and then spend some time to understand what this means for you specifically.

3. You do not have to do everything yourself. Identify what needs to be done to keep your household running and then ask yourself these questions: a) Does it really need to be done? b) Am I the only person who can do it? c) Can someone else do an acceptable job? You may decide that the responsibility that has been tended to weekly may fare well if done only once monthly, or that the job could be done by someone you hired, or perhaps a friend could help. Remember, it is permissible to enlist the help of others.

4. Listen to those who know you best. If your family and/or friends are expressing concern for your wellbeing because they believe that you do not have adequate relief from your physical, emotional and mental demands, it is wise to carefully consider their perspective. There is a saying, “it is difficult to see the picture when you are part of the frame.” Sometimes those closest to you can have a better understanding of your needs then you, because you are so close to the situation. If others are saying that you look tired and stressed, take their concern seriously, don’t just
discount them.

5. If you recognize that there needs to be a change, act on it. Although you and others may know that there needs to be a change it is easy to delay action, because you don’t know what to do or where to start. Keep reading.

6. Seek help from others to make a plan. There is no such thing as a “Parkinson’s Plan.” Your situation is unique because you and your loved one are unique. The plan for you may be as simple as a leisurely walk and a drink in a coffee shop to relax and recharge. Perhaps a short getaway over a long weekend for rest and relaxation is adequate. However, if a more complex intervention is needed a meeting with the social worker at the Muhammad Ali Parkinson Center (MAPC) is only a call away. The social worker is available to help you and your loved one develop a plan that is specific to you. You may be at the “fact finding” phase of your plan, which involves talking about your preferences, learning about different care options, and understanding the differences in cost.

For many people, the only thought that comes to mind when they hear the words “care options,” is that of people sitting in wheelchairs lining a long hall. Since the population is aging, many different living possibilities now exist, along with many home care agencies that can augment care in many ways from taking your loved on an outing to preparing a meal. All of this for the purpose of keeping your loved one safe, as active as possible and socially engaged.

7. Be agreeable to change your plan. Most likely you will change your plan more than once and possibly frequently. Be flexible, open to continuous evaluation and willing to change as needed. Remember, you cannot steer a parked car.

“A Welcome Respite” by Kathryn Leigh Scott

Last year Brain Support Network (BSN) volunteer Denise Dagan recommended the book “Last Dance at the Savoy,” by Kathryn Leigh Scott, to BSN members.  It is a beautifully written account of the author’s caring for her husband, Geoff, with progressive supranuclear palsy (PSP).  In it she shares both her struggles and lessons learned as a long term caregiver.

This year Kathryn has published “A Welcome Respite,” which is a stand-alone chapter about her struggles with caregiver exhaustion and the need for respite.  She shares the gradual, almost insipid way in which changes to their routine, which she thought were necessary due to Geoff’s progressing symptoms, were destructive to both their quality of life and the closeness of their relationship.

Fortunately, she also shares how she made positive changes to counter the negatives — once she was able to recognize the signs of caregiver exhaustion.  Obviously, her purpose in setting apart these excerpts from “Last Dance at the Savoy” are to help readers recognize their own caregiving exhaustion and offer suggestions to counter it.  Kathryn encourages long term caregivers to “find a new perspective and refresh ourselves…Daily periods of rejuvenation are vital, too.”

Like “Last Dance at the Savoy,” “A Welcome Respite” is NOT focused on PSP.  It is of general interest to all caregivers.  It can be purchased on Amazon for less than two bucks.

Here are a few passages Denise thought worth sharing.  Denise says:  Perhaps you will recognize yourself in some of them.

Robin

————-

“In preserving the impression that all was fine, I was downplaying the increased responsibility and daily adjustments that gave me less time to refresh myself.  The lack of respite resulted in concealed anxiety and increased fatigue.”

Geoff’s “desire to keep his condition secret meant fewer outings and less social contact.  As he required more care, I cut back on my professional work and outside activities, and we spent much of our time alone together.”

“I’d been slipping into unhealthy habits without realizing it, focusing entirely on Geoff’s welfare and ignoring my own.  I’d prepare special, easy-to-eat meals for Geoff but neglect to put food on my own plate, my dinner turning into an afterthought of leftovers eaten over the kitchen sink.  I’d make a nourishing smoothie for him but fail to have one myself.  I learned how to use a gait belt to give me a firm grip when I took Geoff for walks in the park and rigged an over-the-door fully system for him to exercise with at home, but stopped going to the gym myself and didn’t make time for my own fitness routine.  At the end of the day, in an effort to unwind, I’d pour an extra glass of wine when a quiet, reflective walk in the garden would have served me – and Geoff – better.”

After lunch with a fellow caregiver support group member Kathryn observed, “On my drive home, I realized Mari and I had each expressed major signs of caregiver burnout; anxiousness and fatigue; difficulty sleeping; feeling run down and irritable.  Making mistakes while functioning on autopilot indicates difficulty concentrating.  Feeling resentful and overreacting to minor mishaps, shouting at the very people we were caring for – Mari and I had both experienced these.  Were we also eating and drinking more in place of healthier leisure pursuits?”

“There comes a point when caregivers simply cannot do it all on their own.  When the time care for home hospice for Geoff, it should have felt like a respite to me, but I couldn’t see it that way at first.  With hospice in place, I was no longer my husband’s sole caregiver – a major disappointment.  A doctor was on call, with rotating shifts of nursing aides bathing, feeding and medicating him while I stood by, empty-handed, watching others do what I ought to be doing, and hating that I’d relinquished the intimacy of caring for Geoff myself.”

“Being stripped of the mind-numbing routine labor of caregiving had left me rattled and uncertain.  I was experiencing a curious withdrawal anxiety, wanting to be in charge and fearful that I wasn’t.  Stress at not being ‘burdened’ was getting to me.  I was crying too much, not eating enough.  I needed respite and knew it.”

Axovant’s experimental drug for dementia with Lewy bodies failed in trial

Unfortunately one of the few experimental drugs being studied in dementia with Lewy bodies (DLB) has failed. The drug is known as intepirdine. The manufacturer is Axovant. Here’s a link to a short news article from this morning:

www.statnews.com/2018/01/08/alzheimers-axovant-intepirdine/

BIOTECH
A new Alzheimer’s drug, once worth billions, is headed for the trash
By Damian Garde
January 8, 2018
Statnews

Robin

 

Our drug system is set up to fail, for Alzheimer’s, etc. We need biomarkers.

This is an interesting, long article in Politico, of all places, on Alzheimer’s (and diabetes) drug development.  One focus of the article is on developing biomarkers.  Biomarkers are “biological indicators in patients that can be easily measured, and that provide early indicators of whether an experimental drug is actually doing something that’s likely to help the patient. ”  Of course we need biomarkers for all neurological diseases, not just Alzheimer’s.

Here are some excerpts from the article:

The effort largely revolves around finding better biomarkers for…diseases—that is, biological indicators in patients that can be easily measured, and that provide early indicators of whether an experimental drug is actually doing something that’s likely to help the patient. A good biomarker can drastically cut the need for massive, long-running, superexpensive trials, by giving researchers a fast, easily measured and reliable answer to the basic question, “Does this drug work?” It can also give basic researchers clues as to which research avenues are most likely to pay off, avoiding dead ends and speeding the early stages of development.

In Alzheimer’s, researchers have tried to judge the effectiveness of experimental drugs by assessing how the drug affects cognitive decline in patients—by giving patients memory tests, for example. The problem is that most experts now believe that by the time cognitive decline has advanced enough to be clearly detected through memory tests, any window for hitting the brain with a drug capable of staving off the disease has long since closed, possibly for two or more decades. Researchers can give people the drug earlier on in life, before symptoms show—but they might have to wait 20 or 30 years to find out if the drug worked, or even if a test subject had Alzheimer’s in the first place. What researchers need is a biological signal that can indicate a patient is developing Alzheimer’s years before cognitive decline shows up, and that can quickly measure whether a drug is slowing the progress of the disease. Though drugs that attack the brain plaques and tangled proteins that characterize Alzheimer’s haven’t worked so far in patients with cognitive decline, notes Lilly’s Skovronsky, plaques and tangles may in fact be the right biomarkers if they can be assessed in pre-cognitive-decline patients. That’s been hard to do in real time because the full extent of damage until recently could be clearly seen only in brain samples taken after the patient’s death.

Here’s a link to the full article:

www.politico.com/agenda/story/2017/12/13/drug-industry-new-developments-000598

The missing Alzheimer’s pill
When it comes to some of the biggest diseases America faces in the future, our drug system is set up to fail. What needs to happen?
By David H. Freedman
Politico
12/13/2017 05:19 AM EST

Robin

Caregivers are often forgotten (article by widow of Gene Wilder)

This is an article by Karen Wilder, the widow of Gene Wilder who died in 2017 with Alzheimer’s Disease (AD). She writes for ABC News (abcnews.com). Karen Wilder describes her late husband’s symptoms and her role as a caregiver. Though this article is about caregiving for someone with AD, the messages apply to all caregivers. Basically, her messages are that caregivers are overlooked and caregivers can die before their loved ones.

She says: “But let’s not forget that other killer — the silent one that takes its victim even before the disintegration of brain cells does its own dirty work. I am speaking of the crisis that can kill the once-healthy loved spouses, siblings, friends and adult children of Alzheimer’s patients, who devote almost every waking hour of their lives (and also the nights) to caring for a person they love.”

She notes that: “40 percent of Alzheimer’s caregivers die before the patient according to a study done by Stanford Medicine — not from disease, but from the sheer physical, spiritual and emotional toll of caring for a loved one with Alzheimer’s.”

And she says: “It is a strange, sad irony that so often, in the territory of a disease that robs an individual of memory, caregivers are often the forgotten. Without them, those with Alzheimer’s could not get through the day, or die — as my husband did — with dignity, surrounded by love.”

Here’s a link to the article on the ABC News website:

abcnews.go.com/Entertainment/gene-wilders-widow-care-alzheimers/story?id=52045475

Gene Wilder’s widow on what it’s like to care for someone with Alzheimer’s
By Karen Wilder
Jan 2, 2018, 12:36 PM ET
ABC News

Robin

Parkinson’s group meetings in January that may be of interest to Brain Support Network members

Happy New Year!

Some Northern and Central California Parkinson’s Disease (PD) support groups
have a guest speaker or program planned for January 2018.  I’ve listed below the meetings that may be of interest to Brain Support Network members.

In particular, I’d recommend any of the talks by Dr. Salima Brillman euphemistically referred to as “PD – more than motor symptoms.”  This refers to hallucinations and delusions.  This talk is sponsored by Acadia Pharmaceuticals, the maker of Nuplazid.  These talks may be of interest to our Lewy body dementia group members.

And I’d recommend the talk by Dr. Lin Zhang on hallucinations and delusions in Sacramento.

The talk in Fresno by Dr. Rafael Zuzuarregui on sleep and Parkinson’s would certainly have relevance to those with multiple system atrophy and Lewy body dementia.

The talk in Berkeley by Dr. Andreea Seritan on anxiety and depression in Parkinson’s will likely be worthwhile.  A fee is expected at that meeting.

Finally, our BSN member, Bob Wolf, is speaking in Walnut Creek on January 20th about his wife’s journey with Lewy body dementia.  He wrote a wonderful book called “Honey, I Sold the Red Cadillac!”

Do you need to know the support group meeting location, day/time,
contact info, and how to RSVP if required?  Please refer to the Stanford
Parkinson’s website for all Northern and Central California support groups:

http://parkinsons.stanford.edu/support_groups.html

Enjoy the rain but stay dry,
Robin

**********************

Chico
Wednesday, 1/3, 1:30-3pm
Guest Speaker:  Erica Schultheis, Butte Home Health and Hospice
RSVP?:  No.

Half Moon Bay
Friday, 1/5, 1-2pm
Guest Speaker:  Chase Montara, manager, Adult Day Healthcare Program, Half Moon Bay Senior Center
Topic:  Spirituality and health challenges
RSVP?:  No.

Yuba City (Tri-Counties)
Monday, 1/8, 1-2pm
Guest Speaker:  Jennifer Kim, OT, occupational therapist, Fountains Skilled Nursing and Physical Rehab Center
Topic:  Adaptive equipment and strategies for successful self-feeding
RSVP?:  No.

Union City/Mark Green Sports Center
Tuesday, 1/9, 2:45-4pm
Guest Speaker:  Michael Galvan, Community Resources for Independent Living (CRIL)
Topic:  Assistive devices to help with PD
RSVP?:  No.

Palo Alto Young Onset Parkinson’s
Location:  Stanford Hospital H3210 (third floor)  (Jan. meeting only)
Tuesday, 1/9, 6:30-8pm
Guest Speaker:  Joyce Liao, MD, neuro-ophthalmologist, Stanford
Topic:  Vision and reading difficulties in PD
RSVP?:  Yes, if this is your first time attending.  Please RSVSP to
Martha Gardner, group leader, at least one day in advance

Menlo Park/Little House  (New meeting location!  No longer at Avenidas
in Palo Alto.)
Wednesday, 1/10, 2-3:30pm
Guest Speaker:  Salima Brillman, MD, movement disorder specialist, private practice, Menlo Park
Topic:  Current Parkinson’s treatments and what’s in the pipeline
RSVP?:  No.

Robin’s Note:  This is NOT focused on hallucinations and delusions but they will certainly be addressed.

Sonoma/Vintage House
Thursday, 1/11, 10-11am
Guest Speaker:  Gillian Galligan, executive neuroscience sales specialist, Acadia Pharmaceuticals
Topic:  Beyond motor symptoms – overview and new treatment option for hallucinations and delusions
RSVP?:  No.

Stockton
Thursday, 1/11, 1:30-3pm
Guest Speakers:  Kevin Chiong and Nanci Shaddy
Topic:  Delay the Disease (exercise program)
RSVP?:  No.

Redding
Friday, 1/12, 1-3:30pm
Discussion Topic:  Communication and relationships
RSVP?:  No.

Fresno
Saturday, 1/13, 10am-noon
Guest Speaker:  Rafael Zuzuarregui, MD, movement disorders specialist,
UCSF Fresno
Topic:  Parkinson’s and sleep
RSVP?:  No.

Pleasanton
Saturday, 1/13, 10am-noon
Guest Speaker:  Salima Brillman, MD, movement disorders specialist, private practice, Menlo Park
Topic:  Parkinson’s – more than motor symptoms
RSVP?:  No.

San Jose/The Villages
Tuesday, 1/16, 10am-noon, Cribari Auditorium
Guest Presenters:  Mwezo and Jane, Kujiweza
Program: Interactive workshop on how to fall, how to get up, and fall
prevention.  Wear comfortable clothing.
RSVP?:  Yes, required if you are not a resident of The Villages. Contact
Alice Pratte, group leader, 408-223-8033, at least 24 hours in advance
to obtain community access.

Sacramento/Arden Arcade
Thursday, 1/18, 10am-noon
Guest Speaker:  Lin Zhang, MD, PhD, movement disorder specialist, UC Davis
Topic:  Hallucinations and delusions connected with PD
RSVP?:  No.

Salinas
Thursday, 1/18, 1-3pm
Guest Speaker:  Salima Brillman, MD, movement disorder specialist, private practice, Menlo Park
Topic:  PD – more than motor symptoms
RSVP?:  No.

Walnut Creek (Mt. Diablo)
Saturday, 1/20, 9am-noon  (speakers 10:45am-11:45am)
Guest Speaker #1:  Lori Santos, Rock Steady Boxing (RSB) East Bay
Topic #1:  Fighting back against PD with RSB
Guest Speaker #2:  Bob Wolf, group member and author of “Honey, I Sold the Cadillac”
Topic #2:  Bob’s journey with Lewy body dementia
RSVP?:  No.

Berkeley
Saturday, 1/20, 10:30am-noon
Guest Speaker:  Andreea Seritan, MD, geriatric psychiatrist, UCSF
Topic:  Addressing anxiety and depression in PD
RSVP?:  Yes, required to PDActive, 510-832-8029
Fee:  $10 (suggested)

Mill Valley (Marin County)
Friday, 1/26, 1-3pm (speaker is from 1-2pm)
Guest Speaker:  Sandra Shefrin, MD, movement disorder specialist, private practice, Mill Valley
RSVP?:  No.

Happy New Year and Thank You from Brain Support Network!

Happy New Year and Thank You!

Brain Support Network would like to extend heartfelt appreciation to all our community members for contributions throughout the year, and especially in meeting our challenge grant in December 2017.

Together, in 2017, we have successfully completed 95 brain donations, published 600 unique posts to Facebook, and distributed over 250 more detailed email updates on LBD, PSP, MSA, and CBD. We were able to accomplish so much.

Best wishes for a happy and healthy 2018!

Advice from a spouse caregiver (eight items)

I read this advice today on a Yahoo!Group from a caregiver whose husband has passed away. You might find some value here.


Here are some things that helped us:

1. [My husband] wanted to know what was happening, so he uses his computer to research the disease in the early stages. I was able to help him with good resources. I’m both a nurse and a librarian, so this was easy for me. You might want to seek out the assistance of a reference librarian if this would be helpful for you. … We even enclosed [some print information about the diagnosis] with our Christmas newsletter shortly after [my husband’s] diagnosis. Learn enough to get a sense of what to expect, but don’t obsess. No two cases are exactly alike.

2. I wish I had set aside more time, especially early on when [my husband was] still was able to get out and about, to make plenty of memories to hold onto after he was gone. But I’m eternally grateful for those we did make time for. Even after he was home bound, we did some fun things together and with our adult sons. It was good for them to have those good memories, too.

3. Make a detailed list of things other people could help you with. You may not need or get them all, but make the list anyway. When friends ask what they can do, you’ll not be able to think of anything otherwise. With the list, you can choose something that person is especially suited to do and ask for that. When you’re feeling in over your head, use the list to seek out help as well. Do not hesitate to ask! You have people in your life who love you and/or Ted and want to help, whether you realize it or not – neighbors, church or other organization members, coworkers and/or former coworkers, community volunteers, family members. Don’t hide your needs and you’ll be surprised how much help is there you didn’t even know about.

4. Consider bringing hospice in sooner rather than later, especially if they offer palliative care in your area. They aren’t just for people who are actively dying! Mike started getting hospice services when he was still going to work every day, and was with them for nearly two years. They were immensely helpful with equipment, supplies, respite, ideas for workarounds, volunteer companionship and project assistance, finding facility care when the time came, nursing care and communication with [my husband’s] primary care doctor and neurologist, emotional and spiritual support, you name it.

5. Get the equipment you need when you need it, but don’t get ahead of yourself and spend a lot of money on expensive equipment you may only need for a short while. Hospice can *really* help with this. For the big ticket items, think about how you’ll be able to use them after [your husband] is gone. (I know. It’s hard to think about his being gone at this point. And you shouldn’t dwell on it. But do be practical.) we bought a recliner/lift chair that [my husband] basically lived in for more than 1 1/2 years. Almost two years after he left me, I’m still using it daily. We also bought a recumbent exercise bike so [my husband] could continue exercising after he could no longer ride his regular bicycle. …

6. If you haven’t done so already, get a durable power of attorney for yourself and set yourself up as the designated payer for social security. [My husband] was nervous about doing this, but he knew it was necessary. I kept him in the loop and got his agreement with every decision, and that let him know he could trust me to make the same decisions he would. His cognition was slow but lucid until the end, thankfully. Some people have to make those decisions without input from the person they are making them for. We waited almost too long to set the social security thing up because we didn’t realize they didn’t recognize a POA. Once [my husband] could no longer sign his name or speak clearly on the phone, both were essential and I was glad we had the foresight to put them into place before we got that far.

7. Know that when you are stressed, it may be hard to figure out what to do first even with simple things like getting up in the morning. I made myself index cards for the bathroom and kitchen with step by step instructions for morning and evening routines (4 cards). Then I put them back to back in two snack size ziplock bags to waterproof them. When I was so overwhelmed I was paralyzed just trying to figure out whether to brush my teeth or take a shower first, all I had to do was follow the list. I still use the bathroom list sometimes.

8. Keep a variety of grab and go meals on hand for when cooking or even planning is just too hard. If you have a good size freezer, use it liberally. Same goes for you slow cooker. When you do cook, make big batches and freeze single-serve microwaveable portions. If anyone offers to bring you a meal, let them!

 

2017 Accomplishments and Year-End Challenge Grant (for contributions by Dec. 31st!)

As 2017 ticks down, we hope you enjoy some quality-time with family and friends. We wanted to share our results for 2017. Plus, this is a great time to make a charitable contribution as other generous donors are doubling your contribution.

UPDATE

Brain Support Network (BSN) continues to pursue its three missions:
(1) create and disseminate information on LBD, PSP, MSA, and CBD to members (You are one of 450 Northern Californians on our network’s email list.)
(2) coordinate the local caregiver support group in San Mateo
(3) help any family with brain donation.

We (BSN volunteers and part-time employees) have kept busy in 2017:

UPDATE

Brain Support Network (BSN) continues to pursue its three missions:

(1) create and disseminate information on LBD, PSP, MSA, and CBD to members

(2) help any family with brain donation

(3) coordinate the local caregiver support group in Northern California

We (BSN volunteers and part-time employees) have kept busy in 2017:

* We sent out over 250 email updates, most of which focused on one of four specific disorders: LBD (Lewy body dementia), PSP (progressive supranuclear palsy), MSA (multiple system atrophy), and CBD (corticobasal degeneration). Many emails relate to caregiving and dementia caregiving.

* We published over 600 Facebook posts on similar subjects (because some people prefer Facebook).

* We served as a clearinghouse of information and support for network members.

* We have kept our web site relevant and up to date (e.g. our “Top Resources” lists for the four primary disorders and our blog).

* We organized 94 brain donations (a new record for BSN), most of which were delivered to the Mayo Clinic in Jacksonville. (Of course the year isn’t quite finished.)

* We hosted our largest-ever “Research Update and Practical Conference on PSP/CBD” in cooperation with the UCSF Memory and Aging Center on October 28, 2017, in San Mateo. Conference video and handouts are available.

CHALLENGE GRANT

This is the time of year when we ask you for assistance.

Five long-time support group members and two long-time BSN benefactors have offered a “challenge grant” to network members. Your charitable contributions through December 31st will be matched up to $8,000. Please help us take advantage of this opportunity and help make possible our efforts for the coming year.

If you mail a check, please write “match” on the memo line along with the name of the family member or friend that you are honoring or remembering. Or, enclose a note with that information. Make checks payable to “Brain Support Network,” and mail to BSN, PO Box 7264, Menlo Park, CA 94026. To count towards the challenge donation, checks should be dated and postmarked by December 31, 2017, Your check does *not* need to be received by this date.

If you make an online contribution (via credit card), please write the name of your family member/friend after selecting “in honor of” or “in memory of.” Please append “/Match” to the name of the person. To count towards the challenge donation, online contributions should be completed by Sunday, December 31, at 11:59pm California time.

Brain Support Network is recognized by the IRS as a 501(c)(3) tax-exempt charity and your donations are deductible to the extent allowed by law. Please know that any amount—$25, $50, $100, $250, $500, or more—is appreciated! Thank you for supporting our three missions!

Happy 2018 to you and your families!

Take care,
Robin (volunteer)
Brain Support Network CEO