Gadgets, equipment, and tricks for mobility, safety, mealtime, etc.

Brain Support Network (BSN) and Stanford’s Parkinson’s Community Outreach co-hosted a virtual meeting in late August 2023. Attendees were invited to share “gadgets” (equipment, tools) or “tricks” (techniques with every-day items) they find useful in caregiving for family members with Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration, and Parkinson’s Disease.
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PART (primary age-related tauopathy) research

One of Brain Support Network’s missions is to facilitate brain donations around the US for various neurodegenerative disorders and healthy controls.  A good percentage of the neuropathology reports are returned with the finding of primary age-related tauopathy (PART).  PART is a disorder of the protein tau.  To be diagnosed with Alzheimer’s disease (AD), one must have both tau tangles and amyloid plaques.  In PART, only the tau tangles are present.  And the tau tangles are in the medial temporal lobes.  PART is *only* diagnosed through brain donation or brain autopsy.

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