Stanford’s Lewy Body Dementia Research Center of Excellence and Brain Support Network are co-hosting this Lewy body dementia caregiving symposium. This is a hybrid event — some attending in-person on Stanford’s campus and many attending virtually.
Date/Time:
Saturday, October 14, 2023
10am to 2pm PT (with a break for lunch – no speakers)
Space is limited, so please register now!
There are two ways to join — virtually (online) or in-person at Stanford.
VIRTUAL REGISTRATION IS NOW OPEN!
Who should attend? Everyone is welcome — family caregivers, home care aides, healthcare professionals, anyone in the community interested in learning how to cope with Lewy body dementia, PD dementia, or dementia with Lewy bodies.
Virtual Attendance:
$10/each
$20/each – “pay-it-forward” ticket for yourself and sponsor a ticket
Is $10 is a financial hardship? Please let us know and we’ll provide a code for a free ticket.
Do have the financial means to sponsor someone else’s attendance? Please choose the “pay-it-forward” ticket level ($20). Or, you can donate directly to Brain Support Network, with a note that the contribution is earmarked for event scholarships.
Deadline to register for the virtual symposium:
Saturday, October 14, 2023, 10:30am PT
IN-PERSON REGISTRATION IS NOW OPEN!
Location:
Stanford Center for Academic Medicine
453 Quarry Road, Palo Alto, CA 94304
Doors Open: 9:30am
Parking is free and plentiful
Lunch is included
Who should attend in-person? We welcome those who are caring for a family member or friend with Lewy body dementia, Parkinson’s disease dementia, or dementia with Lewy bodies.
In-person Attendance:
$20/each – includes lunch
$40/each – “pay-it-forward” ticket for yourself and sponsor a ticket
Is $20 is a financial hardship? Please let us know and we’ll provide a code for a free ticket.
Do have the financial means to sponsor someone else’s attendance? Please choose the “pay-it-forward” ticket level ($40). Or, you can donate directly to Brain Support Network, with a note that the contribution is earmarked for event scholarships.
Deadline to register for the in-person symposium:
Thursday, October 12, 2023, noon PT
(We need time to order lunches for attendees)
Visit a resource table with information from Stanford Neurology, Brain Support Network, Family Caregiver Alliance, and the Lewy Body Dementia Association. Stanford staff can tell you about research studies underway for which you or your family member may be eligible.
Worried about covid-19? The room is fairly spacious, with probably 4-feet between chairs. Some of the organizers will be wearing masks. Masks are not required but recommended. If you are still concerned, register to attend virtually!
Afterwards, visit the historic Stanford Cactus Garden, which is a short walk from the Center for Academic Medicine.
PROGRAM
Our first speaker is Kathleen Poston, MD, Stanford. She’ll give an overview of Lewy body dementia — symptoms, diagnosis, and treatment.
Next up is Christina Irving, LCSW, Family Caregiver Alliance. She will discuss communication challenges in the context of dementia and hallucinations/delusions.
After the lunch break, we’ll feature a panel of LBD caregivers. Some of the caregivers have already lost their loved ones, and the diagnosis of LBD was confirmed through brain donation. Many of the caregivers are members of Brain Support Network’s Lewy body dementia caregiver support group.
OTHER DETAILS
Within a few weeks of the event, we will email everyone who registered a list of resources from Stanford Neurology, Brain Support Network, Family Caregiver Alliance, and the Lewy Body Dementia Association.
The symposium will be recorded. We will share a link to the recording with everyone registered.
Questions? Please email Brain Support Network.
Brain Support Network (BSN) and Stanford’s Parkinson’s Community Outreach co-hosted a virtual meeting in late August 2023. Attendees were invited to share “gadgets” (equipment, tools) or “tricks” (techniques with every-day items) they find useful in caregiving for family members with Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration, and Parkinson’s Disease.
One of Brain Support Network’s missions is to facilitate brain donations around the US for various neurodegenerative disorders and healthy controls. A good percentage of the neuropathology reports are returned with the finding of primary age-related tauopathy (PART). PART is a disorder of the protein tau. To be diagnosed with Alzheimer’s disease (AD), one must have both tau tangles and amyloid plaques. In PART, only the tau tangles are present. And the tau tangles are in the medial temporal lobes. PART is *only* diagnosed through brain donation or brain autopsy.