Brain Support Network sponsors various events valuable to families dealing with neurological disorders. When these events have been recorded, videos are generally available for on-line streaming from BSN’s YouTube channel.
The Allan Marcus Fund for Families in Need with PSP has successfully completed its giving for 2017. The Marcus family and Brain Support Network (BSN) approved six grants to families with loved ones with progressive supranuclear palsy (PSP) to provide services such as in-home caregiving, travel to family reunions, needed physical therapy, and more. It was an honor to hear your stories and help make what we hope will be precious memories. The Marcus family aims to provide this fund annually – please join BSN’s PSP email list to be kept informed as more information is made available in the new year.
MSA Coalition 2017 Patient and Family Conference: October 13-14, 2017 in Nashville. The Coalition has announced the dates and location for their annual conference. Brain Support Network Board member and former MSA caregiver Candy Welch will be speaking on the topic of brain donation. BSN will also have a table at the conference of our top MSA materials. Stay tuned for more details. Visit the MSA Coalition site.
Brain Support Network PSP/CBD Research Update and Family Conference, Saturday, October 28, Foster City (San Francisco Bay Area). Save the date! BSN, in partnership with the UCSF Memory & Aging Center, will host a conference for families coping with progressive supranuclear palsy and corticobasal degeneration. The morning will feature international researchers in town for a major conference on PSP, CBD, and tau. The afternoon will feature Bay Area clinicians, healthcare professionals, and families. Stay tuned for more details!
PAST NEWS & EVENTS
The Allan Marcus Fund for Families in Need with PSP, established earlier this year with generous funds from Allan’s family, is now accepting grant applications for up to $1500 in funding. And applicants no longer need to be existing members in the BSN network – but now that you’ve found us, we hope you will sign up! Click here to learn more or download the application.
BSN Organizes a Seminar on “Lewy Body Dementia Caregiving – Insights and Experience,” Wednesday, April 19, 2017 in Palo Alto. This seminar features a panel with three BSN Lewy Body Dementia caregivers plus Christina Irving, LCSW, of Family Caregiver Alliance. Learn more.
Santa Clara County or San Mateo County Families in Need – Respite Funds Before June 30th Caregiver respite funds can be spent on in-home care, adult day care, or temporary facility care. These funds must be spent by June 30th! Learn more.
CurePSP Midwest Family Conference: Friday-Saturday, June 23-24, 2017 in Chicago. CurePSP Family Conferences bring together patients and their families with others who are facing the same challenges for educational programming, and fellowship. Learn more.
AFTD’s 2016 Education Conference: Friday, May 5, 2017 in Baltimore. Join the Association for Frontotemporal Degeneration for its annual education conference at the Sheraton Inner Harbor Hotel. Frontotemporal Degeneration is an umbrella term that includes both PSP and CBD. Learn more.
CurePSP Southwest Family Conference: March 17-18, 2017 in Phoenix Brain Support Network exhibited at this CurePSP Family Conference. Incredibly, we had helped 10% of the attendees with brain donation arrangements already! Learn more.
BSN Sets New Records in 2016! Compared to 2015, we saw 45% more people donate to BSN and we accomplished 23% more brain donations. We also met our $12,000 end-of-year challenge grant in December. Thanks to the staff, volunteers, and families who made this success possible.
CurePSP 2016 International Research Symposium: Thursday-Friday, October 27-28, 2016 in Jersey City The CurePSP annual International Research Symposium that brings together international investigators to hear about and discuss the latest advances in prime of life neurodegeneration including PSP, CBD, MSA and related diseases. The Symposium highlights research by CurePSP grantees and is open to all researchers interested in clinical and basic studies. Learn more.
MSA Coalition Patient and Family Conference: Friday-Saturday, October 14-15, 2016 in New Orleans. This is the MSA Coalition’s annual “Patient and Family Conference”. Download the agenda here. Robin Riddle represented BSN with two presentations on Friday, October 14. See the slide deck from her presentations.
4th World Parkinson Congress: Tuesday-Friday, September 20-23, 2016 in Portland. World Parkinson Congresses provide an international forum for dialogue on the latest scientific discoveries, medical practices, and caregiver initiatives related to Parkinson’s disease. Learn more.
Robin Riddle Honored with SCCMA’s 2016 Citizen Award on June 7, 2016 The Santa Clara County Medical Association awarded Riddle for her work to found Brain Support Network and its work to fight neurological disease. Prior recipients of the award include Mrs. Lucile S. Packard and California Senator Jerry Hill. Learn more.
CurePSP: Patient and Medical Professionals Education Day Focus on PSP, Thursday, June 2, 2016 in Philadelphia. Want to learn more about progressive supranuclear palsy (PSP)? Join CurePSP, Penn Medicine and The Dan Aaron Parkinson’s Rehabilitation Center/Good Shepherd Penn Partners (GSPP) for an interactive educational day. Learn more.
AFTD 2016 Annual Education Conference, Friday, May 13, 2016, in Minneapolis. This event was sponsored by The Association for Frontotemporal Degeneration. Brain Support Network CEO, Robin Riddle, led a breakout session on practical “Tips, Resources, and Gadgets” for caregivers. Download Robin’s 2-page PDF hand-out from the event.
CurePSP Family Conference, Friday/Saturday, February 19/20, 2016. This event, sponsored by CurePSP, was important for families dealing with PSP, MSA, and CBD. The event was CurePSP’s annual conference for the Western Region and was held at the San Mateo, California, Marriott. Brain Support Network provided staffing for this event and facilitated a break-out session for patients with PSP and CBD. This event was not video recorded.
Dementia and Alzheimer’s Caregiver Conference, November 2015 in Santa Rosa. This free event was held at Jackson Theater, Sonoma Country Day School, 4400 Day School Place, Santa Rosa, California, and intended for caregivers, friends, and family members. Speakers reviewed the spectrum of dementia diseases (e.g. Alzheimer’s, Lewy Body Dementia) and shared techniques for quality care. Click here for a PDF of the event agenda. Access videos of each of the seven segments of the event on the BSN Youtube channel.
Parkinson’s and Atypical Parkinsonism Caregiver Symposium, July 2014 in Foster City. Organized with “Stanford University School of Medicine”. This event was not video recorded.
PSP and CBD Research Update, February 2014 in San Francisco. Organized with “UCSF Memory and Aging Clinic”. See the video on the UCSF Youtube channel.
Atypical Parkinsonism Symposium, October 2012 in Burlingame. Organized with “Stanford University School of Medicine”. See the video on the Stanford APDA Youtube channel.