SPARK! Panel Featuring Dr. Bruce Miller and Brain Support Network

Brain Support Network was proud to co-host with Family Caregiver Alliance (caregiver.org) a panel discussion following the movie “SPARK!” about Robin Williams and Lewy body dementia (LBD).  Featured panelists were Bruce Miller, MD, neurologist and director of the Memory & Aging Center, UCSF; Dianne, caregiver to her late husband Gary; and Denise, caregiver to her late father Harry.  Both Gary’s and Harry’s diagnosis of LBD were confirmed through brain donation, arranged by Brain Support Network.

The recording of the LBD panel is now available. 

SPARK! Panel Featuring Dr. Bruce Miller and Brain Support Network – Recording and Resources

Brain Support Network was proud to co-host with Family Caregiver Alliance (caregiver.org) a panel discussion following the movie SPARK! about Robin Williams and Lewy body dementia (LBD).  The panel featured:

  • Bruce Miller, MD, neurologist and director of the Memory & Aging Center, UCSF.  Dr. Miller played a key role in SPARK! in explaining symptoms of Lewy body dementia.
  • Dianne, caregiver to her late husband Gary.  Gary’s diagnosis of LBD was confirmed through brain donation.  Dianne is the leader of the local BSN LBD caregiver support group meeting.
  • Denise, caregiver to her late father Harry.  Harry’s diagnosis of LBD was confirmed through brain donation.  Denise is a longtime member of the local BSN LBD caregiver support group.

The panel moderator was Robin Riddle, CEO of Brain Support Network.

The recording from the June 30, 2021 panel is now available here:

youtu.be/PGjSIFqWwOs

In its post-film and post-panel resource list, Family Caregiver Alliance refers to BSN’s Lewy body dementia webpage and, in particular, BSN’s “Top Resources for Lewy Body Dementia” list:

“Top Resources for Lewy Body Dementia”

Robin

 

Gadgets, equipment, and supplies for mobility, safety, incontinence, mealtime, etc.

Brain Support Network and Stanford co-hosted a virtual meeting on Sunday, June 27. Attendees were invited to share “gadgets” (equipment, tools) they find useful in caregiving for family members with Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration, and Parkinson’s Disease. Gadgets fell into various categories, including:

– Mobility
– Safety
– Incontinence
– Meal-time
– Medication management

Here’s a spreadsheet (posted to Google Drive) we prepared with info on all the items shared:

>> Spreadsheet

Here’s the recording of the meeting, where many of the items are shown (in a show-and-tell fashion).

>> Video

Notes about the meeting will be coming soon!  Keep your eye on this blog post!

Robin