Groups in Other Geographies

Face-to-Face Support Groups

There are no support groups like Brain Support Network that welcome caregivers of those dealing with PSP, LBD, MSA, and CBD, and sitting grouped by disorder. However, there are:

Some groups are for caregivers only while other groups are for anyone coping with a diagnosis.

National Support Resources

Some of the national organizations offer tollfree support phone numbers, such as:

  • The Association for Frontotemporal Degeneration.  HelpLine 866-507-7222
  • Lewy Body Dementia Association.  Caregiver Link 800-539-9767
  • MSA Coalition.  Support Hotline 866-737-5999

Support Groups for Other Disorders

If you don’t live in an area where there is a local support group, consider forming a new group or joining a…

  • Local Parkinson’s support group. The easiest-to-access list of PD support organizations by state is the American Parkinson Disease Association website. Visit
  • Local Alzheimer’s support group. Find out about AD groups by visiting the Alzheimer’s Association website. Visit
  • Local caregivers support group. You might be able to find one by contacting your local senior center.
  • Online support group telephone-based support group