Brain Donation Operations Continue, Despite COVID-19
Brain Support Network is working with our partners–including funeral homes, pathology resources, body donation organizations, and hospice agencies–to ensure that brain donation plans we’ve previously put into place will still be implemented, and that new arrangements can be made if necessary. Our staff–all working from home–continues to help families. Please don’t miss an opportunity because of the COVID-19 epidemic. Every person diagnosed with a neurological disorder has only one chance to donate their brain both to get a confirmed diagnosis and to help find a cure for neurological diseases. See the CDC website for information about the virus and the disease.
Caregiver Support Group Meetings Continue, Despite COVID-19
On March 15, Brain Support Network conducted three caregiver-only support group meetings, via conference call. Lewy body dementia, multiple system atrophy, and progressive supranuclear palsy caregivers met. The meetings were facilitated by caregivers whose loved ones’ LBD, MSA, and PSP diagnoses were confirmed through brain donation. Due to shelter-in-place restrictions in the Bay Area, we have converted our regular in-person support group meetings to dial-up conference calls, one call per disorder. We limit the call size to ten, splitting into two groups above that number with one facilitator per call. If you live in Northern California and are coping with LBD, MSA, PSP, or CBD, join our support group meeting email list.
LEARN ABOUT THE DISORDERS
…to ensure the best possible care and to aid
effective communication with your care team.
ARRANGE A BRAIN DONATION
…to receive a confirmed diagnosis and to
contribute to the search for a cure.
end of life is days awayend of life is up to 6 months away