LEARN ABOUT THE DISORDERS
…to ensure the best possible care and to aid
effective communication with your care team.
ARRANGE A BRAIN DONATION
…to receive a confirmed diagnosis and to
contribute to the search for a cure.
end of life is days awayend of life is up to 6 months away
Brain Donation Operations Continue, Despite COVID-19
Brain Support Network is working with our partners–including funeral homes, pathology resources, body donation organizations, and hospice agencies–to ensure that brain donation plans we’ve previously put into place will still be implemented, and that new arrangements can be made if necessary. Our staff–all working from home–continues to help families. Please don’t miss an opportunity because of the COVID-19 epidemic. Every person diagnosed with a neurological disorder has only one chance to donate their brain both to get a confirmed diagnosis and to help find a cure for neurological diseases. See the CDC website for information about the virus and the disease.
Local Support Group Meetings Continue, Despite COVID-19
If you live in Northern California and are coping with Lewy body dementia, multiple system atrophy, progressive supranuclear palsy, or corticobasal degeneration, email us about joining our caregiver-only support group meetings. Three separate meetings are held (PSP/CBD are in one group) with at least one experienced caregiver to facilitate each meeting. (The facilitators’ family members with these disorders have died and the diagnoses confirmed through brain donation.) We alternate between outdoor, in-person meetings in San Mateo and virtual meetings. For the virtual meetings, most participate via video but some join by phone only. Meetings are generally on the 2nd Sunday of each month, 5-7pm.