Rep. Wexton, confronting degenerative disease (PSP), finds her voice through AI

Here are some excerpts from a “Washington Post” article about Rep. Jennifer Wexton, who has progressive supranuclear palsy (PSP).


It seemed like the simplest of things — the sound of her own voice. But Rep. Jennifer Wexton (D-Va.) “cried happy tears” recently when she typed out some words and heard them read aloud by an artificial intelligence-generated version of the speaking voice she has all but lost to a degenerative medical condition. … Wexton made headlines this year by using a robotic-sounding speech application to deliver remarks on the House floor. It was a widely hailed display of resilient spirit, but the app didn’t sound like her.

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“Can’t Sleep? Try This Proven Alternative to Medication” – cognitive behavior therapy (NYT)

Many caregivers and those with neurological diseases suffer from insomnia.  In this 2023 “New York Times” article on cognitive behavior therapy for insomnia (CBT-I), two sources are suggested for finding CBT-I practitioners near you:

* Try the Society of Behavioral Sleep Medicine to find members

* Or the Penn International CBT-I directory

The article says “If you cannot find a provider, C.B.T.-I. instruction is easy to access online. Yet it is rarely the first thing people try.”

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2024 PSP/CBD (those with diagnosis) Virtual Local Support Group Meeting Dates

Here’s information about the 2024 Brain Support Network virtual support group meetings for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis who live in Northern or Central California.

We meet monthly, generally on the second Sunday, 2-2:30pm.  The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading