2024 PSP/CBD (those with diagnosis) Virtual Local Support Group Meeting Dates

Here’s information about the 2024 Brain Support Network virtual support group meetings for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis who live in Northern or Central California.

We meet monthly, generally on the second Sunday, 2-2:30pm.  The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading

Local group member Camilla on corticobasal degeneration and palliative care

Local support group member Camilla recently spoke to the Palo Alto senior community where she lives about corticobasal degeneration (CBD) and palliative care. CBD is a very rare disorder. It is sometimes called an atypical parkinsonism disorder. Palliative care is little-understood field of medicine that focuses on comfort and the whole person. These are notes Camilla shared of her remarks.

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Gadgets, equipment, and tricks for mobility, safety, mealtime, etc.

Brain Support Network (BSN) and Stanford’s Parkinson’s Community Outreach co-hosted a virtual meeting in late August 2023. Attendees were invited to share “gadgets” (equipment, tools) or “tricks” (techniques with every-day items) they find useful in caregiving for family members with Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration, and Parkinson’s Disease.
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