A local Parkinson’s Disease (PD) caregiver support group member recently offered her highest recommendation for a book titled “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). We encourage you to buy it! Barbara authored five books before this one. She was a Parkinson’s care partner for over twenty years. Her latest book is “Advice from a Parkinson’s Widow.”
Category Archives: Caregiving – General
Local support group member’s advice on items to have in place
Local support group member Joan’s husband recently passed away with Lewy body dementia. This is a list of items she encourages families to consider before a loved one’s passing. Some of the advice is specific to spouses. A bit of the advice is California-specific. None of the advice is specific to Lewy body dementia.
Top Three Things I Learned as a Caregiver (Recording, Discussion Summary, and Notes)
In December 2023, Brain Support Network and Stanford Parkinson’s Community Outreach co-hosted a discussion for caregivers to share the top three things they have learned about caregiving. Caregivers offered advice to each other, including advice caregivers wished they could tell their younger selves.
2024 LBD, PSP/CBD, and MSA Caregiver-only Local Support Group Meeting Dates
Here’s information about the 2024 Brain Support Network LBD, PSP/CBD, and MSA caregiver-only support group meetings for those living in Northern or Central California.
Since 2004 (20 years!), we have convened local support group meetings for caregivers of those with Lewy body dementia (LBD), progressive supranuclear palsy (PSP), multiple system atrophy (MSA), corticobasal degeneration (CBD), and atypical parkinsonism.
Local group member Camilla on corticobasal degeneration and palliative care
Local support group member Camilla recently spoke to the Palo Alto senior community where she lives about corticobasal degeneration (CBD) and palliative care. CBD is a very rare disorder. It is sometimes called an atypical parkinsonism disorder. Palliative care is little-understood field of medicine that focuses on comfort and the whole person. These are notes Camilla shared of her remarks.