Brain Support Network (BSN) has seven board members. Most members of the Board are motivated to serve as a result of their experience with a family member who was diagnosed with an Atypical Parkinson’s disorder. Board members bring a variety of legal, managerial, and medical expertise to BSN.
Robin Riddle, Board Member and CEO, learned about neurodegenerative decline when her late father, Larry, was diagnosed with Progressive Supranuclear Palsy (PSP) in 2004. With the help of three other caregivers, in July 2004, Ms. Riddle started the “San Francisco Bay Area PSP Support Group.” This Group became Brain Support Network in 2005 with expansion to include MSA, CBD, and LBD. The donation of Larry’s brain in 2007 to Mayo Clinic in Jacksonville, Florida, was Robin’s first organization of a brain donation. In June 2011 the “PSP Genetics Study Group”, including scientists from Mayo, published in Nature Genetics a landmark study using Larry’s brain tissue that identified three new genes linked to PSP.
Earlier, in the corporate world, Ms. Riddle worked in marketing for high‐tech companies in Silicon Valley, including Covad, Unisys, and NetGravity. She holds BA and MA degrees from Stanford and an MBA from the University of Pennsylvania Wharton Business School.
Mindy Lumm, Board Member and Secretary, joined BSN’s NorCal Support Group in 2013 after her late mother, Susan, was diagnosed with CBD (confirmed through brain donation). Mindy joined Brain Support Network as its Secretary in early 2017. She works in high-tech as a project manager.
Linda Higueras, Board Member, joined the Lewy Body Dementia (LBD) caregiver support group in 2008, California, after her father, Carlos, was diagnosed with LBD. After Carlos passed away, Linda became the primary caregiver for her mother, who suffered two strokes before passing away. In 2010, Linda organized a conference for 200 family caregivers on non-Alzheimer’s dementias in Sonoma County, California. This conference was one of the first events organized by Brain Support Network. In November 2015 Linda organized a dementia caregiver conference in Santa Rosa.
Linda’s career is in Human Resources; she has worked in winery, retail, and financial services industries. She is the first Human Resources director of Williams Selyem Winery. She joined the BSN Board in 2014.
Candy Welch, Board Member, Support Group Meeting Facilitator, joined BSN in 2005 and was the first meeting facilitator for MSA. Candy cared for her husband, Bob, who was diagnosed with MSA in December 2002, until he died in 2008 at the age of 57. She has continued to volunteer as primary support group organizer and support group MSA discussion facilitator.
Candy has represented BSN as a speaker at national events and has hosted several joint webinars with the Stanford Medical School. She joined the BSN Board in 2016.
Sharon is a semi-retired physician of nuclear medicine. Her husband Gerry was thought during life to have progressive supranuclear palsy. Sharon was Gerry’s main caregiver and joined BSN’s caregiver support group several years ago. Upon Gerry’s passing, his brain was donated to research. Surprisingly, the brain autopsy report revealed he had Lewy body dementia, Alzheimer’s Disease, and other pathologies. Sharon is still part of BSN’s caregiver support group, helping both PSP and LBD caregivers. She joined the BSN Board in 2018.
Tish Campbell, Board Member, joined BSN shortly after her husband Jack was diagnosed with MSA in 2010. She was Jack’s sole caregiver until he died in 2015 at age 75. Jack donated his brain to the Mayo Clinic for research. The autopsy showed that he had Lewy body disease (LBD), plus mild changes of the Alzheimer’s type, and hardening of the arteries.
Tish is a volunteer for Ashby Village (Berkeley) and for the Oakland Kaiser’s newly diagnosed breast cancer support program. She has worked in a nutrition program for malnourished infants in Colombia, was a counselor at Preterm, a first trimester abortion clinic in Washington, DC, and most recently worked in environmental law for a San Francisco nonprofit called The California Environmental Trust. She is currently retired. Tish has a BA from Sarah Lawrence College and a JD from the University of San Francisco. She joined the BSN Board in 2019.