Florida-based poet Carlton Johnson has been diagnosed with progressive supranuclear palsy. He published a book titled “A Thimble of Time” in 2020 (available on Amazon). Here’s a poem about focus, despair, and stumbling over words:
Brain Support Network has helped over 1400 families with brain donation. Many times, the neuropathology report shows that the donor had a pathology called LATE, which stands for limbic predominant age-related TAR DNA-binding protein 43. LATE pathology often co-occurs with other pathologies. Recently, the journal “Neurology” published some research about LATE, based on brain autopsies.