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Monthly Archives: December 2021

7 Foods High in Water Content (Cleveland Clinic)

Date December 30, 2021
Posted by Anoki Casey
7 Foods High in Water Content (Cleveland Clinic)

People with neurodegenerative diseases often don’t drink enough water.  The Cleveland Clinic lists seven fruits and vegetables that are high in water-content:

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Short excerpts on “ambiguous loss” from article about Pauline Boss

Date December 19, 2021
Posted by Anoki Casey
Short excerpts on “ambiguous loss” from article about Pauline Boss

This is an article about Pauline Boss, the originator of the term “ambiguous loss.”  “Ambiguous loss” is a loss without a conclusion.  Or, “an unclear loss that can be physical or psychological and it has no resolution.”

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Barbara Karnes shares two tools for working with grief

Date December 10, 2021
Posted by Anoki Casey
Barbara Karnes shares two tools for working with grief

In a recent blog post, nurse Barbara Karnes recommends two tools for dealing with grief. Read the Barbara Karnes, RN blog post here.

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Did You Know?

Those with progressive supranuclear palsy have a tendency to fall backwards.  Learn more about PSP.

The most common disorder involving the protein tau is Alzheimer’s Disease.  Two rare tauopathies are progressive supranuclear palsy and corticobasal degeneration.  Learn more about PSP.  Learn more about CBD.

Respiratory dysfunction is the leading cause of death for people with multiple system atrophy. This includes stridor and sleep apnea. In fact, stridor may appear suddenly, even in people without a history of stridor.

Dementia is an umbrella term describing cognitive and memory symptoms. The most common disorder with dementia symptoms is Alzheimer’s Disease. The next two most common disorders with dementia symptoms are Vascular Dementia and Dementia with Lewy Bodies (DLB). Most researchers think Vascular Dementia is second, but some argue for DLB.   Learn more.

Almost 80% of people with progressive supranuclear palsy will experience swallowing problems.

Latest Blog Posts
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  • 2023 Brain Support Network Caregiver-only Support Group Meeting Dates
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  • “Treating hallucinations” in PD (review article)
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  • Recommended lifestyle changes in those with orthostatic intolerance
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  • “Purposeless groaning” in neurological disorders
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  • BSN Supporting Parkinson’s Research Plus Lyme Disease Research
    July 25, 2022
  • High burden on those with PSP and their caregivers, regardless of type 
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  • “I got tired” (poem by Parkinson’s caregiver)
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  • Home
  • Brain Donation
    ▼
    • Overview
    • Brochures
    • ———————–
    • Requirements and Process
    • Frequently-Asked-Questions (FAQ)
    • Case Studies
    • ———————–
    • Mayo Clinic
    • Brain Donation – Immediate Need
    • Brain Donation – Need is Soon
  • Support Groups
    ▼
    • Overview
    • BSN Support Group
    • Other Northern / Central California Groups
    • Groups in Other Geographies
    • Online Groups Meeting Anytime and Virtual Groups Meeting Monthly
    • Events
    • Grant Programs
    • Join Our Email List
  • Education
    ▼
    • Overview
    • The Four Atypical Parkinsonism Disorders
    • Three Good Overviews
    • ———————–
    • Lewy Body Dementia (LBD)
    • Progressive Supranuclear Palsy (PSP)
    • Multiple System Atrophy (MSA)
    • Corticobasal Degeneration (CBD)
    • ———————–
    • Symptoms
    • Treatments
    • Top Resources
    • Diagnostic Criteria
    • Events
  • Donate
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