Plan to join Brain Support Network – either in-person on the Stanford campus or virtually – for a symposium for the progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) communities, on Saturday, June 29, 2024, 10am to 3pm PT. Co-hosted by Stanford. Everyone is welcome.
Category Archives: CBD
Top Three Things I Learned as a Caregiver (Recording, Discussion Summary, and Notes)
In December 2023, Brain Support Network and Stanford Parkinson’s Community Outreach co-hosted a discussion for caregivers to share the top three things they have learned about caregiving. Caregivers offered advice to each other, including advice caregivers wished they could tell their younger selves.
2024 PSP/CBD (those with diagnosis) Virtual Local Support Group Meeting Dates
We meet monthly, generally on the second Sunday, 2-2:30pm. The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading
Local group member Camilla on corticobasal degeneration and palliative care
Local support group member Camilla recently spoke to the Palo Alto senior community where she lives about corticobasal degeneration (CBD) and palliative care. CBD is a very rare disorder. It is sometimes called an atypical parkinsonism disorder. Palliative care is little-understood field of medicine that focuses on comfort and the whole person. These are notes Camilla shared of her remarks.