Stanford Researcher Speaks to Local CBS Support Group

Stanford’s Ze Yang, PhD, joined the Brain Support Network local CBS/CBD support group on Sunday, February 9, 2025, where he talked about corticobasal syndrome (CBS) research.  Dr. Yang is trying to identify a blood biomarker for CBS, which would be used to accurately diagnose the disorder in a living person.  Currently, there are no biomarkers for this rare disorder.  A diagnosis is only possible through brain donation.

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Plática con los Expertos: Entendiendo PSP y SCB: Retos y Oportunidades Terapéuticas

En esta webinario, comenzaré con algunas observaciones sobre la historia de la parálisis supranuclear progresiva (PSP) y el síndrome corticobasal (SCB). Luego, explicaré la presentación clínica, la fisiopatología (cómo se produce la enfermedad) y las claves para el diagnóstico de estas dos intrigantes enfermedades. Al final de la presentación, hablaré sobre las modalidades de tratamiento actuales y los medicamentos experimentales que se están desarrollando.

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Occasional Researcher Talks

In 2025, we will be asking Northern and Central California researchers (from Stanford, UCSF, etc) to give short, virtual talks on their research on PSP, CBS/CBD, MSA, or LBD.  When we are asked by a researcher to help them recruit for their studies, we will invite them to speak with our community members, sharing some background and context for their research.

In general, these short talks will be scheduled for the second Sunday, at 1:15pm.  (This may seem like a strange time but it’s at the tail-end of another regular monthly virtual support group meeting.)

If you are a member of our local PSP/CBD, MSA, or LBD support groups, you’ll be invited to these researcher talks.  If you’d like to join one of our local support groups, please complete this online form.

If you are a local researcher and would like to speak to our community members, please contact us.

2025 PSP/CBD (those with diagnosis) Virtual Local Support Group Meeting Dates

BSN logoIn 2025, the Brain Support Network  support group for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis will gather virtually on the second Sunday, 12:30-1pm.  Only those who live in Northern or Central California may join.  The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading

2025 LBD, PSP/CBD, and MSA Caregiver-only Local Support Group Meeting Dates

BSN logoIn 2025, Brain Support Network’s LBD, PSP/CBD, and MSA caregiver-only support group meetings will take place on the second Sunday of each month, with the exception of May, 5-6:30pm.  The meetings are open only to those living in Northern or Central California.  We alternate between in-person gatherings (even-numbered months) and virtual gatherings (odd-numbered months).

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