Top Three Things I Learned as a Caregiver (Recording, Discussion Summary, and Notes)

In December 2023, Brain Support Network and Stanford Parkinson’s Community Outreach co-hosted a discussion for caregivers to share the top three things they have learned about caregiving. Caregivers offered advice to each other, including advice caregivers wished they could tell their younger selves.

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2024 PSP/CBD (those with diagnosis) Virtual Local Support Group Meeting Dates

Here’s information about the 2024 Brain Support Network virtual support group meetings for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis who live in Northern or Central California.

We meet monthly, generally on the second Sunday, 2-2:30pm.  The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading

Local group member Camilla on corticobasal degeneration and palliative care

Local support group member Camilla recently spoke to the Palo Alto senior community where she lives about corticobasal degeneration (CBD) and palliative care. CBD is a very rare disorder. It is sometimes called an atypical parkinsonism disorder. Palliative care is little-understood field of medicine that focuses on comfort and the whole person. These are notes Camilla shared of her remarks.

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CurePSP Wellness Workshop: Holistic Wellness for PSP, CBD and MSA

CurePSP is hosting a two-hour virtual wellness workshop on Wednesday, April 19 starting at 3pm PT. Speakers will focus on self-care for better sleep and wellbeing; seated movement and breathwork; and music therapy. (The presentations will be recorded and posted on the CurePSP YouTube channel.) Following the presentations, participants can join a one-hour interactive discussion group, reflecting on what wellness means to them. Registration is free.
Wednesday, April 19, 2023 • 12:00 – 3:00 PM ET

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