One attendee reflected on the conference this way: "Excellent speakers, all of them. This was a well-balanced program between research and practical."
The morning was focused on updates from nine researchers, with two panels. The afternoon was focused on practical information from eight clinicians and laypeople, with two panels.
Nine generous families sponsored the videorecording of the conference. Brain Support Network asked a medical writer to take notes throughout the conference. See the conference agenda, full set of notes from the day, and link to the conference video.
Below, you will find:
* each speaker's one-page handout (distributed at the conference)
* most speakers slides (not all speakers allowed their slides to be shared)
* presentation or panel notes (prepared by BSN's medical writer)
* video of the presentations and panels
BSN makes these conference materials available to the public at no charge. We thank the speakers and our donors. Without their generosity, this conference would not have been possible. Please help make our next conference possible by donating today.
RESEARCH UPDATE – PART ONE
Alex Klein, PhD | CurePSP
Moderator of the panel
Panel: Research | Part 1 | Panel notes
Video
Adam Boxer, MD, PhD | UCSF MAC
Advances in therapeutic development for CBD and PSP
Richard Tsai, MD, MBA | UCSF MAC
Tau PET imaging in corticobasal syndrome
FTD Disorders Registry: A patient and caregiver registry to advance science
Lawrence I. Golbe, MD | Rutgers Robert Wood Johnson
A Cluster of PSP in Northern France: Is this the Key?
Handout
Slides (sorry, not available from speaker)
Presentation notes
Video
Daniel C. Lee, PhD | University of South Florida, Tampa
Understanding the role of polyamines during tauopathies
RESEARCH UPDATE – PART TWO
Alex Klein, PhD | CurePSP
Moderator of the panel
Panel: Research | Part 2 | Panel Notes
Video
Haung (Ho) Yu, PhD | Columbia
Clearing tau from neurons
Stewart Clark, PhD | University of Buffalo
Progress Toward an Animal Model of PSP
Adam Gerstenecker, PhD | University of Alabama at Birmingham
Cognitive, behavioral, and functional aspects of PSP
Gerard Schellenberg, PhD | Penn Neurodegeneration Genomics Center
What we know and don’t know about PSP and CBD genetics
PRACTICAL CONFERENCE – PART ONE
Robin Ketelle, RN | UCSF Memory & Aging Center
Moderator of the panel
Panel: Practical | Part 1 | Panel Notes
Video
Phil Myers, (former) caregiver to wife with PSP | Brain Support Network
Eight Things We Learned From This Journey
Jeanette Brown, MD (retired), person with PSP
Being (a) Patient with PSP
PRACTICAL CONFERENCE – PART TWO
Robin Riddle, CEO | Brain Support Network
Moderator of the panel
Panel: Practical | Part 2 | Panel Notes
Video
Sharon J Sha, MD, MS | Stanford
Understanding corticobasal syndrome and progressive Supranuclear palsy: What are tauopathies?
Handout
Slides
Presentation notes
Video
Megan DePuy, MBA, MS, SLP | Private Practice, San Mateo
Speech, Language, Swallowing treatment for PSP and CBD
Heather E. Moss, MD, PhD | Stanford
Vision symptoms in PSP and CBD: what causes them and what can be done?
Handout
Slides (sorry, not available from speaker)
Presentation notes
Video