We recently came across the “Working Daughter Manifesto” for caregivers. Working Daughter is a website started by Liz as a resource for those balancing caregiving, working, and life.
Dr. Nicole Reidy
In early August 2025, CurePSP hosted a webinar with Dr. Nicole Reidy, a clinical social worker, on the important and under-discussed topics of ambiguous loss and anticipatory grief. While the talk was aimed at caregivers of those with PSP, CBD, and MSA (under the “CurePSP umbrella”), everyone challenged by uncertainty and ongoing loss will find this talk of interest.
source: Freepik
Ambiguous loss is a type of grief common among caregivers: your loved one is physically present but psychologically absent. The term was coined decades ago by Pauline Boss, PhD. She noted that this loss lacks clarity or closure because the loved one is still alive.
Credit: Valentin Tkach for The Washington Post
This is a beautiful story of love, faith, and family by a daughter from southern California who took her mother to Mecca to complete an Umrah pilgrimage (a condensed version of Hajj).
Her mother was diagnosed in 2021 with progressive supranuclear palsy (PSP) after three years of unexplained falls, minor car accidents, dropping things, asking nonsensical questions, and speaking like a drunk.
Source: Kismet Mag
This is an essay by Xita Rubert, a Spanish novelist, who in 2024 received the Premio Herralde, the most prestigious prize for a novel in the Spanish language. She is based in New York and is a doctoral candidate in Comparative Literature at Princeton University.
