Source: Vera F.
This virtual gathering brought together caregivers from the Stanford Parkinson’s Caregiver Support Program and Brain Support Network for a creative show-and-tell.
Caregiving for someone with Parkinson’s can be both meaningful and exhausting. This workshop explores how caregivers can “Take Five,” finding five minutes of calm, connection, or rejuvenation when the road gets rough, including moving; music; working with words; breathing; and mindfulness.
We recently came across the “Working Daughter Manifesto” for caregivers. Working Daughter is a website started by Liz as a resource for those balancing caregiving, working, and life.
Dr. Nicole Reidy
In early August 2025, CurePSP hosted a webinar with Dr. Nicole Reidy, a clinical social worker, on the important and under-discussed topics of ambiguous loss and anticipatory grief. While the talk was aimed at caregivers of those with PSP, CBD, and MSA (under the “CurePSP umbrella”), everyone challenged by uncertainty and ongoing loss will find this talk of interest.
source: Freepik
Ambiguous loss is a type of grief common among caregivers: your loved one is physically present but psychologically absent. The term was coined decades ago by Pauline Boss, PhD. She noted that this loss lacks clarity or closure because the loved one is still alive.
