NYT: Strategies to cope with personality and mood changes

Illustration of managing caregiving and mood

source: Marta Medem/New York Times

This is a worthwhile article from The New York Times about coping with a loved one’s personality and mood changes that result from dementia.  The author reviews five strategies that can help:

  • understanding why mood changes occur
  • using the DICE approach (Describe, Investigate, Create and Evaluate)
    emphasize tone over truth (which includes fibbing and re-directing)
  • embrace light to improve sleep and mood
  • reduce boredom since boredom can cause mood swings.

The section on “understanding why mood changes occur” includes these excerpts:

“Personality and mood changes are often caused by deterioration in parts of the brain that control attention, learning, feelings…focus and behavior…”

“Additionally, people with dementia have less brain energy to process and adjust to sensations (such as pain or fatigue) and environmental stimuli…  Many experts also agree that people with dementia have lower stress thresholds than they once had and might tip into feeling overwhelmed more quickly. This is the point when someone with dementia might suddenly become agitated or combative or begin ‘screaming’.”

“As the disease progresses, people lose language skills and communicate more through behavior…”

Find the full article here:  (behind a paywall)
When Dementia Changes a Loved One’s Personality

Shifts in behavior can be challenging to manage. Experts have five strategies that can help.By Louisa Kamps
Oct. 23, 2024
New York Times

In Memory of Steven Russell

Steven Russell

Steven Russell

It is with profound sadness that we at Brain Support Network (BSN) announce the passing of our dear friend, Steven Russell, on Sunday, August 25, 2024.  Steven was a pivotal figure in the creation of BSN, serving as a founding Board member and finance director.  His unwavering belief in BSN’s mission was reflected in his final act of generosity—donating his brain for research. (Brains from neurologically-normal donors are needed.)

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“The Heartbreak and Hazards of Alzheimer’s Caregiving”

Illustration of two people sitting far apart on couch

source: Carmen Segovia/Scientific American

“Scientific American” published an article about Alzheimer’s caregiving. Despite the title, I think the article applies to caregiving of anyone with a neurological disorder and perhaps all caregiving! Here are some excerpts.

Excerpt:

The vast majority of caregivers know full well that their spouses or parents are ill, yet they still behave in ways they know are counterproductive: arguing, blaming, insisting on reality, and taking symptoms personally. Yes, Cathy understood that she was dealing with a disease, with someone suffering from delusions and hallucinations, but when Frank [with Alzheimer’s], panicked by imaginary thieves, refused to crack open a window, Cathy [his wife] fumed with resentment, and that feeling gradually overcame her desire to be understanding and reasonable. … [Frank] lost his ability to see his wife as a complete person.

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“Tips to Manage Carers Stress” by PSP Association (UK)

While this post and infographic are from the PSP Association (pspassociation.org.uk), the tips about managing caregiver stress apply to all caregivers. As the PSP Association (PSPA) is based in the UK, some of the terminology used is unique to the UK! (Example – in the US, we use the term “caregivers,” while “carers” is used in the UK.)

From the PSP Association:

Caring for someone can be rewarding as well as tiring, putting a lot of demand on your physical and emotional energy.

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