Lewy Body Dementia Panel Discussion – Notes (June 30 Event Hosted by FCA and BSN)

At the end of June, Brain Support Network (BSN) was proud to co-host a panel discussion with Family Caregiver Alliance (FCA) about Lewy body dementia (LBD). The panel discussion followed the showing of the film “SPARK: Robin Williams and his Battle with Lewy Body Dementia,” produced by the Lewy Body Dementia Association (LBDA). Many of […]

Lewy Body Dementia (LBD)

Lewy Body Dementia (LBD) is the most common of the four atypical parkinsonisms and exists in two variants: Dementia with Lewy Bodies and Parkinson’s Disease Dementia.  Depending on whom you are talking to, LBD is also classified as a non-Alzheimer’s dementia. LBD Symptoms Lewy Body Dementia (LBD) is an umbrella term that refers to two […]

Overview of Lewy Body Dementia (2006, AlzOnline)

The University of Florida runs the “AlzOnline” program, online caregiver support for Alzheimer’s caregivers. From time to time, an article in their “Reading Room” catches my eye. Tonight, I ran across their 2006 overview of Lewy Body Dementia. This section is particularly good — “Family Education and Planning Ahead After the Diagnosis.” I’ve copied most […]

Severity of Lewy body pathology in the brain

One of Brain Support Network’s mission is to help families with brain donation arrangements.  We’ve seen lots of neuropathology reports come back with various descriptions of “Lewy body disease.” A Lewy body is an abnormal clump of alpha-synuclein protein.  These clumps were described by Dr. Frederic Lewy, a neurologist. Lewy bodies are present in the […]

Short summary of Lewy body dementia (Johns Hopkins, 1-21-13)

This short summary of Lewy Body Dementia was in a Johns Hopkins Health Alert recently.  If you sign up to receive these health alerts, note that Johns Hopkins uses the email list to try to sell its publications, and the same alert can be sent out multiple times over a few-month period. Accurate diagnosis of LBD is quite difficult.  […]