Short video on the science of Lewy Body Dementia – what is a “Lewy body”?

Though this video is 18 months old and addresses in a general way the (now old news) that actor Robin Williams had Lewy Body Dementia, I still think the video is worth watching.  It’s one of the best descriptions I’ve seen of Lewy bodies.  The video, titled “The Science of Lewy Body Dementia,” is about […]

Notes from webinar on three non-AD dementias, including Lewy Body Dementia

There was a 90-minute webinar on April 6th, hosted by Resources for Integrated Care, was packed with lots of info on dementia with Lewy bodies (DLB) and frontotemporal dementia (FTD) with less info on vascular dementia (VAD).  (Note that throughout the webinar, with few exceptions, the term “Lewy body dementia” was used.)  The webinar, for […]

Alzheimer’s Australia fact sheets on Lewy body disease

Alzheimer’s Australia ( publishes ten terrific two-page “help sheets” on the topic of Lewy body disease.  So many people use the term “Lewy body disease” incorrectly but not this organization. They say: “Lewy body disease includes three overlapping disorders: •    Dementia with Lewy bodies •    Parkinson’s disease •    Parkinson’s disease dementia This overlap results in […]

Lewy body dementia excerpts from curriculum on dementia for healthcare professionals

Someone in our local support group recently sent me this link to US Dept. of Health and Human Services’s curriculum for physicians (especially primary care physicians) and healthcare professionals (social workers, psychologists, pharmacists, emergency department staffs, dentists, etc.) on dementia. Though the web address includes the term “Alzheimer’s,” Lewy body dementia is well-covered in this […]

“Managing daily activities and fall prevention” in Lewy body dementia – UCSF webinar

In early April 2020, the UCSF Memory and Aging Center (MAC) hosted a webinar on managing daily activities and fall prevention — the third in its ongoing series on Lewy body dementia (LBD).  The two wonderful speakers were Sarah Dulaney, RN, clinical nurse specialist with UCSF, and Helen Medsger, long-time Brain Support Network LBD support […]