Atlas of Caregiving (atlasofcaregiving.com) is a nonprofit that has developed the Atlas CareMap tool to help families better understand and manage their own care situations. Continue reading
Category Archives: Caregiving – Dementia
Lewy Body Dementia Panel Discussion Following the Movie “SPARK” – Notes
In June 2021, Brain Support Network (BSN) was proud to co-host a panel discussion with Family Caregiver Alliance (FCA) about Lewy body dementia (LBD). The panel discussion followed the showing of the film “SPARK: Robin Williams and his Battle with Lewy Body Dementia,” produced by the Lewy Body Dementia Association (LBDA). Many such panel discussions were held over the summer 2021.
“Nothing Could Prepare Me for Watching My Wife Slip Away” (NYT)
This is a sweet guest essay in today’s NY Times by Tom Coughlin, a two-time Super Bowl-winning head coach. He writes about caregiving for his wife Judy, with a diagnosis of progressive supranuclear palsy (PSP). The essay is about the difficulties of being a caregiver (not about PSP).
Gadgets, equipment, and supplies for mobility, safety, incontinence, mealtime, etc.
Stand-a-Roo Standing Aid Single
Brain Support Network and Stanford co-hosted a virtual meeting on Sunday, June 27. Attendees were invited to share “gadgets” (equipment, tools) they find useful in caregiving for family members with Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration, and Parkinson’s Disease.
Can Caregiving Cause PTSD?
credit: adobe via NextAvenue
This is an interesting article from NextAvenue on post-traumatic stress disorder (PTSD) being caused by caregiving.