Video of PSP Family

CurePSP is producing videos of families talking about various diseases.  In this case, Pierre Gervais and his family are interviewed in this 8-minute video.  Pierre has PSP.  The link is here:

The video is a nice overview of symptoms.  Pierre talks about assisted suicide.

A couple of points were made about support:

* Living with this disease is about learning how to support it.

* We are desperate for support.

Too bad there’s nothing about when Pierre was diagnosed.  His MD (movement disorder specialist Nina Browner, MD, I believe) told him he has 6-9 years to live.  Sure seems that Pierre doesn’t have the classic form of PSP, Richardson’s Syndrome.

Do you think there’s value in sharing this with others?  I’m not sure…