CurePSP is producing videos of families talking about various diseases. In this case, Pierre Gervais and his family are interviewed in this 8-minute video. Pierre has PSP. The link is here:
The video is a nice overview of symptoms. Pierre talks about assisted suicide.
A couple of points were made about support:
* Living with this disease is about learning how to support it.
* We are desperate for support.
Too bad there’s nothing about when Pierre was diagnosed. His MD (movement disorder specialist Nina Browner, MD, I believe) told him he has 6-9 years to live. Sure seems that Pierre doesn’t have the classic form of PSP, Richardson’s Syndrome.
Do you think there’s value in sharing this with others? I’m not sure…
Robin