PSP folks –
Someone (the author?) recently posted a link to this 21-page Kindle
ebook ($6) on the PSP Forum:
Tears in My Coffee: Living with Progressive Supranulear Palsy
by Shauna Herrington
Published July 2, 2014 as a Kindle ebook
The post on the PSP Forum described the book as usual for families
dealing with a new PSP diagnosis.
The author’s husband was diagnosed with PSP about a year ago. The
author is a retired nurse.
Here’s the description of the ebook, posted on amazon.com:
“Tears In My Coffee” is the story of how we have undergone major
changes and how I found a way to grieve for what is being taken from us everyday.
PSP changes your life not only for the long term, but can change as fast as a few minutes. This book follows our life over the past year and the changes that have been brought about by this disease.
There is very little information published for families about this
incurable brain disease which shares symptoms with Alzheimer’s,
Parkinson’s, and Amyotrophic lateral sclerosis (ALS) diseases all
Progressive supranuclear palsy (PSP) is a rare degenerative disease of the brain. The disease impairs movements and balance. Many people with PSP also experience changes in mood, behavior, and personality. A decline in cognitive mental processes, such as thinking, memory, attention, and speech, is not uncommon. When these mental changes are severe enough to interfere with everyday activities, they are called dementia.
I hope “Tears In My Coffee” will help others understand what its like when the world stands still and you are still spinning. Many mornings I sit with my cup of coffee and cry silent tears so no one sees the pain this disease has brought into our life.
Living with Progressive Supranuclear Palsy will help you see how the things that suddenly start becoming a part of your world are not the fault of the patient but are caused by this disease and the patient can not control.
PSP takes over the entire family and will change you whether patient or family. Patients look the same, sound the same, but are not the same, PSP changes everything.
Thus far, there’s been one reviewer, who said that she was disappointed.
To read all of this, go to amazon.com. Then do a search on the book title.
If anyone gets this book and reads it, please let me know if it’s any
good. It would be great if someone could share some things they
picked up from the book!