There are two Interesting articles in today’s Economist magazine about dying and having a good death. (I will post separately about those articles.) The articles mention this resource:
Serious Illness Conversation Guide
by Ariadne Labs (founded by Atul Gawande, MD)
The Guide is a one-page checklist for clinicians to find out what a terminally ill patient understands about his/her condition and prognosis. It’s also a way for the clinician to learn what the patient’s goals are. You can find the one-page guide for clinicians here:
The Guide for physicians refers to the “Family Communication Guide.” You can find this short guide here:
This might be a useful resource to generate family discussion when someone has a neurological diagnosis. “This booklet can help you talk with your loved ones about your illness and the future,” according to the guide.