Online Resources and Suggested Books for Advance Planning and End of Life

Hope Hospice has a terrific resource list on advance planning and end of life issues.  It’s divided into three sections:
* online resources for patients and families
* online resources for healthcare professional
* suggested books

I’ve copied it below.



Resources for Patients and their Families

Caring Connections
(provides Advance Health Directive forms)

Coda Alliance

California Coalition for Compassionate Care
[Editor’s Note:  this is now at]

Completing A Life

Family Caregiver Alliance

‘The Five Wishes’

Hospice Foundation of America


New Lifestyles
Free books that list local skilled nursing facilities, Board and Care homes and Assisted Living

Get Palliative Care

National Family Caregivers Association

Physician Orders for Life-Sustaining Treatment (POLST)

Resources for Healthcare Professionals

Academy of Hospice and Palliative Medicine

American Hospice Association

Caring Connections

Certificate Program for End-of-Life Care

End of Life/Palliative Education Resource Center

The EPEC Project (Education in Palliative and End-of-Life Care)

Hospice Foundation of America

Hospice and Palliative Nurses Association

National Hospice and Palliative Care Association

Physician Orders for Life-Sustaining Treatment (POLST)

Suggested Reading

The 36 Hour Day (A Family Guide for the Care of People with Alzheimer’s/Dementia)
Nancy L. Mace and Peter V. Rabins

All Kinds of Love: Experiencing Hospice
Carolyn Jaffe and Carol H. Ehrlich

An Ocean of Time: Alzheimer’s Tales of Hope and Forgetting
Patrick Mathiasen, MD

By No Means: The Choice to Forgo Life-Sustaining Food and Water
Joanne Lynn (editor)

Caring in Remembered Ways: The Fruit of Seeing Deeply
Maggie Steincrohn Davis

Choices at the End of Life: Finding Out What your Parents Want Before It’s Too Late
Linda Norlander,RN, MS and Kerstin McSteen, RN, MS

Dying At Home: A Family Guide for Caregiving
Andrea Sankar

Dying Well: The Prospect of Growth at the End of Life
Ira Byock, MD

Dying with Dignity: A Plea for Personal Responsibility
Hans Kung and Walter Jens

Facing Death and Finding Hope: A Guide for the Emotional and Spiritual Care of the Dying
Christine Longaker

Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying
Maggie Callanan and Patricia Kelly

The Four Stages of Hope: Using the Power of Hope to Cope With Dying
Cathleen Fanslow-Brunjes, MA, RN

Helping Grieving People: When Tears Are Not Enough: A Handbook for Care Providers
Shep J. Jeffreys, EdD.

I’m Here To Help: A Guide for Caregivers, Hospice Workers, and Volunteers
Catherine Ray

On Death and Dying
Elisabeth K bler-Ross, MD

Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill
Cappy Capossela, Sheila Warnock and Sukie