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Local Resources Recommended by Support Group Members

UPDATED: February 2026

Hands making a heart
This webpage is for our local Brain Support Network group members. Over the years, group members have recommended various resources. Contact us if you are a group member and want to add or comment on a resource on this page, please contact us.

  • Care managers
  • Estate planning attorneys
  • Equipment – organizations to donate to or acquire from
  • Fiduciaries
  • Home care agencies
  • Home health agencies
  • Individual caregivers
  • Movement disorder specialists in Northern and Central California
  • Occupational therapists who may have knowledge of PSP, CBD, MSA, and LBD
  • Physical therapist who may have knowledge of PSP, CBD, MSA, and LBD
  • Speech therapists who may have knowledge of PSP, CBD, MSA, and LBD
  • Therapists, social workers, counselors, and psychologists who may be helpful to those with a diagnosis or caregivers

 

The Education Pages Contain…
  • Overview
  • Four Atypical Parkinsonism Disorders
    • Lewy Body Dementia (LBD)
    • Progressive Supranuclear Palsy (PSP)
    • Multiple System Atrophy (MSA)
    • Corticobasal Degeneration (CBD)
  • Symptoms
  • Treatments
  • Top Resources
  • Diagnostic Criteria
  • Events
Did You Know?

Parkinsonism is a general term that describes a cluster of symptoms. Not everyone with parkinsonism has Parkinson’s Disease, though the majority do.

RBD (REM sleep behavior disorder) is a risk factor for developing Lewy body dementia as well as Parkinson’s Disease.

 

There are two types of Multiple System Atrophy: a parkinsonism form and a cerebellar form. Orthostatic hypotension is not required for an MSA diagnosis.   Learn more.

Clinical criteria for dementia with Lewy bodies (DLB) was first proposed in 1996. The criteria were revised in 1999 and 2005. This means that many neurologists in practice today never studied this disorder in medical school, if they graduated in 2005 and earlier.

Frontotemporal degeneration (or frontotemporal lobar degeneration) is an umbrella term referring to disorders of the frontal lobe and temporal lobe.  Within this FTD umbrella are movement disorder subtypes, which includes progressive supranuclear palsy and corticobasal degeneration. Learn more about PSP.  Learn more about CBD.

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  • Gillian and JohnBBC – ‘It’s sink or swim… you feel like you’re drowning’
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  • Biomarker ChartA Biomarker-Based Classification of Corticobasal Syndrome
    July 25, 2026
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    July 20, 2026
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  • NINDSRequest for Community Input on Plan to End Parkinsonism
    July 15, 2026
  • source: Tomi Um via NYTNYT: My Awful Mother Is Getting Alzheimer’s. What Do I Owe Her?
    July 6, 2026
  • “Stridor & Struggles: Sleep in MSA” Mayo Podcast
    June 19, 2026
  • Colorful BrainMost dementia patients have multiple brain diseases. How should they be treated?
    June 2, 2026
Blog Categories
  • Alzheimer's
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  • Caregiving – General
  • CBD
  • End of Life
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  • Home
  • Brain Donation
    ▼
    • Overview
    • Brochures
    • ———————–
    • Requirements and Process
    • Frequently-Asked-Questions (FAQ)
    • Case Studies
    • ———————–
    • Mayo Clinic
    • Brain Donation – Immediate Need
    • Brain Donation – Planning in Advance
  • Support Groups
    ▼
    • BSN Support Groups
    • Northern / Central California Groups
    • Groups in Other Geographies
    • Online Communities
    • Virtual Support Groups
    • Grant Programs
    • Contact Us
  • Education
    ▼
    • Overview
    • The Four Atypical Parkinsonism Disorders
    • Three Good Overviews
    • ———————–
    • Lewy Body Dementia (LBD)
    • Progressive Supranuclear Palsy (PSP)
    • Multiple System Atrophy (MSA)
    • Corticobasal Degeneration (CBD)
    • ———————–
    • Symptoms
    • Treatments
    • Top Resources
    • Diagnostic Criteria
    • Events
  • Donate
    ▼
    • By Credit Card
    • By Check
    • Facebook Fundraisers
    • Vehicles
    • Publicly Traded Securities
    • Donor-advised Fund (DAF)
    • Ecommerce Affiliate Programs
    • Beneficiary Designations
    • In-Kind Donations
    • Other Types
  • Partners
    ▼
    • National Partners
    • International Partners
    • Northern California Partners
    • Pathology Partners
    • Brain Support Network Logos
  • Blog
    ▼
    • All blog posts
    • Alzheimer’s
    • Caregiving – Dementia
    • Caregiving – General
    • Lewy Body Dementia (LBD)
    • Living with a Neurological Condition
    • Multiple System Atrophy (MSA)
    • Progressive Supranuclear Palsy (PSP)
    • Corticobasal Degeneration (CBD)
    • Parkinson’s
  • About BSN
    ▼
    • Overview
    • Mission
    • History
    • ———————–
    • Board of Directors
    • Staff and Volunteers
    • Medical Advisor
    • ———————–
    • Donate
    • Financial Reports
    • Join Our Email List
    • Contact Us
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