End of Life Issues Resource List (from PBS Frontline “Living Old” program)

Did anyone watch the PBS Frontline program called “Living Old”?  It was worthwhile.  Here’s the “End of Life Issues” resource list from the program.  I’ve added web addresses and quite a few notes.

» Growth House: Guide to Death, Dying Grief, Bereavement and End of Life Resources
http://www.growthhouse.org/
A site offering a wide range of help and guidance for families/caregivers of the elderly and those with life-threatening illnesses.

» Handbook for Mortals
http://www.growthhouse.org/educate/flash/mortals/layouts/frameset1.html –> these are excerpts available online; you can also buy the book from Amazon.com (there’s a link on this page)
An online consumer guide for end of life care. Chapters include: Living with Serious Illness; Enduring and Changing; Finding Meaning; Helping Family and Loved Ones; Getting the Help You Need; Talking with Your Doctor; Advance Care Planning; Coping with Events Near Death; Enduring Grief and Loss.

» Aging with Dignity — Five Wishes
http://www.agingwithdignity.org/5wishes.html
A Five Wishes document helps a person express how they want to be treated if they are seriously ill and unable to speak for themself. According to this Web site: “It is unique among all other living will and health agent forms because it looks to all of a person’s needs: medical, personal, emotional and spiritual.”  One of our founding support group members, Storme, highly recommends this document.

» Center for Practical Bioethics
http://www.practicalbioethics.org/  –> I could not get this site to come up; I did confirm the web address
An organization at the forefront of aging and end-of-life issues and the ethics questions surrounding them, this group is also a resource for policy ideas for the government and other organizations.

» National Hospice Foundation
http://www.hospicefoundation.org/
An organizaiton that promotes hospice care and educates families and professionals about caregiving, terminal illness, loss, and bereavement.

» National Hospice and Palliative Care Organization
http://www.nhpco.org
Web site of the “largest nonprofit membership organization representing hospices and palliative care program and professional in the United States,” The NHPCO advocates on behalf of hospices, their patients and their patients families.