Here’s a link to “Encouraging Comfort Care”:
According to the table of contents, these topics are covered:
What is comfort care?
Facts about dementia
How the brain and body change over time
Dementia and residential care facilities
Comfort care in action
Medical decisions you may face
What does research tell us?
How to create meaningful and enjoyable visits
Eating can be comforting too
When is it time for hospice care?
Checklist for encouraging comfort care
Resources and references
I’ve copied below excerpts from a “checklist for encouraging comfort care.”
Here are a few of the resources listed:
National Hospice and Palliative Care Organization is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. It offers a wealth of information about end of-life-care and referrals to local hospices. Contact at (800) 658-8898 or www.nhpco.org
National Health Care Decisions Day is an initiative to encourage people to express their wishes regarding healthcare and for providers and facilities to respect those wishes, whatever they may be. For information about advance directives, contact www.
Center to Advance Palliative Care provides clear, comprehensive palliative care information for people coping with serious, complex illnesses. Contact www.getpalliativecare.
_____ Staff routinely anticipate needs such as hunger, boredom, toileting and fatigue.
_____ Pain is evaluated daily and relief is provided with medications and non-drug measures.
_____ Psychotropic drugs are administered only with your permission.
_____ Staff consistently interact with your loved one in a calm, kind manner.
_____ Staff use language that promotes your loved one’s dignity and individuality.
_____ Staff tap your loved one’s remaining abilities and strengths whenever possible.
_____ Based on your loved one’s wishes and goals of care, you, the physician, and staff have discussed if and when hospitalization should be considered.
_____ Based on your loved one’s wishes and goals of care, a decision has been made if cardiopulmonary resuscitation (CPR) should/should not be initiated.
_____ Based on your loved one’s wishes and goals of care, you have discussed with the physician and staff if oral or intravenous antibiotics should/should not be initiated.
_____ Staff know your preferences/decisions about hospice care.
_____ Staff routinely engage your loved one in one-to-one activities involving the five senses.
_____ Your loved one’s spiritual needs and practices are addressed.
_____ Funeral arrangements are completed and communicated to staff.
_____ Ways of caring for yourself are practiced on a daily basis.