Conference Information

PSP/CBD Research Update and Practical Conference

Saturday, October 28, 2017, Crowne Plaza Hotel in Foster City, California

Hosted by Brain Support Network

Organized in partnership with University of California San Francisco Memory & Aging Center

Generously sponsored in part by Biogen and AbbVie

 

CLICK HERE TO DOWNLOAD CONFERENCE NOTES FOR ALL 20 SPEAKERS.
 

WELCOME


 

Robin Riddle, CEO | Brain Support Network
Welcome

Conference Agenda

 

RESEARCH UPDATE – PART ONE


 

Alex Klein, PhD | CurePSP

Moderator of the panel


 

 

 

 

 

Adam Boxer, MD, PhD | UCSF MAC
Advances in therapeutic development for CBD and PSP

Handout
Slides (sorry, not available from speaker)

 

 

Richard Tsai, MD, MBA | UCSF MAC
Tau PET imaging in corticobasal syndrome

Handout
Slides

 

 

Dianna Wheaton, MS, PhD, CHES | FTD Registry
FTD Disorders Registry: A patient and caregiver registry to advance science

Handout
Slides

 

 

Lawrence I. Golbe, MD | Rutgers Robert Wood Johnson
A Cluster of PSP in Northern France: Is this the Key?

Handout
Slides (sorry, not available from speaker)

 

 

Daniel C. Lee, PhD | University of South Florida, Tampa
Understanding the role of polyamines during tauopathies

Handout
Slides

 

 

RESEARCH UPDATE – PART TWO


Alex Klein, PhD | CurePSP

Moderator of the panel


 

Haung (Ho) Yu, PhD | Columbia
Clearing tau from neurons

Handout
Slides

 

 

Stewart Clark, PhD | University of Buffalo
Progress Toward an Animal Model of PSP

Handout
Slides

 

 

Adam Gerstenecker, PhD | University of Alabama at Birmingham
Cognitive, behavioral, and functional aspects of PSP

Handout
Slides

 

 

Gerard Schellenberg, PhD | Penn Neurodegeneration Genomics Center
What we know and don’t know about PSP and CBD genetics

Handout
Slides

 

 

PRACTICAL CONFERENCE – PART ONE


 

Robin Ketelle, RN | UCSF Memory & Aging Center
Moderator of the panel


 

 

 

Donna Schempp, LCSW | Unaffiliated
Taping into Your Resilience

Handout
Slides

 

 

Leslie Wolf, person with CBD
Holding Steady on Shaky Ground

Handout
Slides

 

 

Phil Myers, (former) caregiver to wife with PSP | Brain Support Network
Eight Things We Learned From This Journey

Handout
Slides

 

 

Jeanette Brown, MD (retired), person with PSP
Being (a) Patient with PSP

Handout
Slides

 

 

PRACTICAL CONFERENCE – PART TWO


Robin Riddle, CEO | Brain Support Network
Moderator of the panel


 

Sharon J Sha, MD, MS | Stanford
Understanding corticobasal syndrome and progressive Supranuclear palsy: What are tauopathies?

Handout
Slides

 

 

Megan DePuy, MBA, MS, SLP | Private Practice, San Mateo
Speech, Language, and Swallowing treatment for PSP and CBD

Handout
Slides

 

 

Erica Pitsch, DPT, NCS | UCSF
Move it or lose it- strategies to stay mobile and stay safe

Handout
Slides

 

 

Heather E. Moss, MD, PhD | Stanford
Vision symptoms in CBD: what causes them and what can be done?

Handout
Slides (sorry, not available from speaker)