Plática con los Expertos: Entendiendo PSP y SCB: Retos y Oportunidades Terapéuticas

En esta webinario, comenzaré con algunas observaciones sobre la historia de la parálisis supranuclear progresiva (PSP) y el síndrome corticobasal (SCB). Luego, explicaré la presentación clínica, la fisiopatología (cómo se produce la enfermedad) y las claves para el diagnóstico de estas dos intrigantes enfermedades. Al final de la presentación, hablaré sobre las modalidades de tratamiento actuales y los medicamentos experimentales que se están desarrollando.

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MedPageToday: Linda Ronstadt’s Rare Brain Disorder

Linda Rondstadt

Credit: Michele R. Berman, MD, and Mark S. Boguski, MD, PhD via MedPageToday

This MedPage Today article from January 2020 about Linda Rondstadt’s diagnosis of progressive supranuclear palsy (PSP), has a good list of the four main type of PSP.  These include Richardson’s syndrome, PSP-parkinsonism, corticobasal syndrome, and akinesia with gait freezing.

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2025 PSP/CBD (those with diagnosis) Virtual Local Support Group Meeting Dates

BSN logoIn 2025, the Brain Support Network  support group for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis will gather virtually on the second Sunday, 12:30-1pm.  Only those who live in Northern or Central California may join.  The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading

2025 LBD, PSP/CBD, and MSA Caregiver-only Local Support Group Meeting Dates

BSN logoIn 2025, Brain Support Network’s LBD, PSP/CBD, and MSA caregiver-only support group meetings will take place on the second Sunday of each month, with the exception of May, 5-6:30pm.  The meetings are open only to those living in Northern or Central California.  We alternate between in-person gatherings (even-numbered months) and virtual gatherings (odd-numbered months).

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