UCSF Sleep Researcher Speaks to Local PSP Support Group

Christine Walsh, PhD

Christine Walsh, PhD

UCSF’s Christine Walsh, PhD, joined the Brain Support Network local PSP support group on Sunday, March 9, 2025, where she talked about sleep issues in progressive supranuclear palsy (PSP).  Dr. Walsh wants to improve the quality-of-life for those with PSP and their care partners, as well as identify a sleep-based biomarker for PSP.
Continue reading

Plática con los Expertos: Entendiendo PSP y SCB: Retos y Oportunidades Terapéuticas

En esta webinario, comenzaré con algunas observaciones sobre la historia de la parálisis supranuclear progresiva (PSP) y el síndrome corticobasal (SCB). Luego, explicaré la presentación clínica, la fisiopatología (cómo se produce la enfermedad) y las claves para el diagnóstico de estas dos intrigantes enfermedades. Al final de la presentación, hablaré sobre las modalidades de tratamiento actuales y los medicamentos experimentales que se están desarrollando.

Continue reading

MedPageToday: Linda Ronstadt’s Rare Brain Disorder

Linda Rondstadt

Credit: Michele R. Berman, MD, and Mark S. Boguski, MD, PhD via MedPageToday

This MedPage Today article from January 2020 about Linda Rondstadt’s diagnosis of progressive supranuclear palsy (PSP), has a good list of the four main type of PSP.  These include Richardson’s syndrome, PSP-parkinsonism, corticobasal syndrome, and akinesia with gait freezing.

Continue reading

2025 PSP/CBD (those with diagnosis) Virtual Local Support Group Meeting Dates

BSN logoIn 2025, the Brain Support Network  support group for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis will gather virtually on the second Sunday, 12:30-1pm.  Only those who live in Northern or Central California may join.  The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading