source: Freepik
Ambiguous loss is a type of grief common among caregivers: your loved one is physically present but psychologically absent. The term was coined decades ago by Pauline Boss, PhD. She noted that this loss lacks clarity or closure because the loved one is still alive.
Credit: Valentin Tkach for The Washington Post
This is a beautiful story of love, faith, and family by a daughter from southern California who took her mother to Mecca to complete an Umrah pilgrimage (a condensed version of Hajj).
Her mother was diagnosed in 2021 with progressive supranuclear palsy (PSP) after three years of unexplained falls, minor car accidents, dropping things, asking nonsensical questions, and speaking like a drunk.
Niyatee Samudra, MD
Join our webinar about how progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) are diagnosed, the most common symptoms, and how these symptoms can be treated.
Thursday, August 28, 3-4:30pm PT
credit: Ben Lazarus
Ben Lazarus was previously diagnosed with young onset Parkinson’s (at the age of 46) and started blogging about his experience back in August 2021. Then, in March 2025, his diagnosis changed to progressive supranuclear palsy (PSP), and he’s still blogging. His new blog site called “Living with and Fighting PSP,” at benlazpsp.com. Ben lives in Israel.
Christine Walsh, PhD
UCSF’s Christine Walsh, PhD, joined the Brain Support Network local PSP support group on Sunday, March 9, 2025, where she talked about sleep issues in progressive supranuclear palsy (PSP). Dr. Walsh wants to improve the quality-of-life for those with PSP and their care partners, as well as identify a sleep-based biomarker for PSP.
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