Dr. Nicole Reidy
In early August 2025, CurePSP hosted a webinar with Dr. Nicole Reidy, a clinical social worker, on the important and under-discussed topics of ambiguous loss and anticipatory grief. While the talk was aimed at caregivers of those with PSP, CBD, and MSA (under the “CurePSP umbrella”), everyone challenged by uncertainty and ongoing loss will find this talk of interest.
source: Freepik
Ambiguous loss is a type of grief common among caregivers: your loved one is physically present but psychologically absent. The term was coined decades ago by Pauline Boss, PhD. She noted that this loss lacks clarity or closure because the loved one is still alive.
Credit: Valentin Tkach for The Washington Post
This is a beautiful story of love, faith, and family by a daughter from southern California who took her mother to Mecca to complete an Umrah pilgrimage (a condensed version of Hajj).
Her mother was diagnosed in 2021 with progressive supranuclear palsy (PSP) after three years of unexplained falls, minor car accidents, dropping things, asking nonsensical questions, and speaking like a drunk.
Niyatee Samudra, MD
Join our webinar about how progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) are diagnosed, the most common symptoms, and how these symptoms can be treated.
Thursday, August 28, 3-4:30pm PT
credit: Ben Lazarus
Ben Lazarus was previously diagnosed with young onset Parkinson’s (at the age of 46) and started blogging about his experience back in August 2021. Then, in March 2025, his diagnosis changed to progressive supranuclear palsy (PSP), and he’s still blogging. His new blog site called “Living with and Fighting PSP,” at benlazpsp.com. Ben lives in Israel.
