In late June 2022, CurePSP (curepsp.org) hosted a webinar on “Managing Swallowing Changes in PSP, CBD, and MSA” with Stanford speech language pathologist (SLP) Julie Hicks. Her presentation provided general information about working with an SLP, what a swallowing evaluation looks like, and what treatment might involve. In the question-and-answer period, Julie Hicks addresses when to see an SLP, the use of feeding tubes, practical tips families can use to help people slow down and control impulsivity while eating, and how to find an SLP with experience treating those with parkinsonism disorders.
Category Archives: Parkinson’s
40% of Elderly Brains Found to Include “LATE” (brain research)
Researchers studying donated brain tissue coined the term “LATE” a few years ago. “LATE” stands for limbic-predominant age-related TDP-43 encephalopathy.
Silver linings to Parkinson’s and other neurological disorders?
source: Robin Broadhead
In January 2022, neurologist Dr. Bas Bloem posted a video online, commenting on whether there were any silver linings to being diagnosed with Parkinson’s. He said that it was his perception that receiving a PD diagnosis often caused people to pause and reflect, and decided to put energy into their families, enjoy their children, and travel to dream destinations.
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Symptoms and biomarkers predicting mortality in parkinsonism
Since parkinsonism disorders can be confused for each other — Parkinson’s disease, Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration, and vascular parkinsonism — especially early on in the disease process, perhaps more important than the clinical diagnosis is the prognosis.
“Being a caregiver” (short remarks by local support group member)
Local support group member T cares for her husband Chris with Parkinson’s Disease Dementia. Chris was diagnosed almost ten years ago. As T says, it was a diagnosis that “changed everything and nothing.”