source: Terri Pease
Our friend Denise Dagan shared her book review of “Love, Dignity & Parkinson’s: from Care Partner to Caregiver,” by Terri Pease, PhD. Though “Parkinson’s” is in the title, this book will be of interest to spouse caregivers coping with Lewy body dementia and the other atypical parkinsonism disorders. It is directed at spouse caregivers. Denise highly recommends the book. Her brief summary is below.
A local Parkinson’s Disease (PD) caregiver support group member recently offered her highest recommendation for a book titled “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). We encourage you to buy it! Barbara authored five books before this one. She was a Parkinson’s care partner for over twenty years. Her latest book is “Advice from a Parkinson’s Widow.”
Source: Barbara Sheklin Davis
Our friend Denise Dagan shared her book review of “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). Though “Parkinson’s” is in the title, this book will be of interest to caregivers coping with Lewy body dementia and the other atypical parkinsonism disorders. While “wife” is in the title, this book will be of interest to all caregivers regardless of whether they are caring for a spouse or not. Denise highly recommends the book and calls is a “quick read” (at 94 pages). Her comments are shared here, and then Denise provides a summary of the 20 lessons.
In December 2023, Brain Support Network and Stanford Parkinson’s Community Outreach co-hosted a discussion for caregivers to share the top three things they have learned about caregiving. Caregivers offered advice to each other, including advice caregivers wished they could tell their younger selves.
People with parkinsonism have a much higher risk of hip and other fractures. Our friends at UCSF’s Movement Disorders Center and other US clinics are recruiting for the TOPAZ (Trial of Parkinson’s and Zoledronic Acid) study.
Researchers will test if zoledronate, an FDA-approved medication for osteoporosis (thinning of the bone), can prevent fractures in people with parkinsonism, whether or not they have osteoporosis. Using zoledronate for this purpose is investigational.
Enroll today! Participate in the TOPAZ study remotely, from the comfort of your home. You could receive $100 upon enrollment and $50 per year during the study.
To be eligible, individuals must be at least 60 years of age with NO prior hip fracture, AND have been diagnosed with any of the following conditions:
To learn more or to enroll, visit the study website TOPAZstudy.org. If you have questions, email [email protected], or call 415-317-5748.
