Here’s information about the 2024 Brain Support Network virtual support group meetings for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis who live in Northern or Central California.We meet monthly, generally on the second Sunday, 2-2:30pm. The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading2024 PSP/CBD (those with diagnosis) Virtual Local Support Group Meeting Dates
Here’s information about the 2024 Brain Support Network virtual support group meetings for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis who live in Northern or Central California.We meet monthly, generally on the second Sunday, 2-2:30pm. The meetings are loosely facilitated by a local support group member with a CBS diagnosis. Continue reading
Brain Support Network (BSN) and Stanford’s Parkinson’s Community Outreach co-hosted a virtual meeting in late August 2023. Attendees were invited to share “gadgets” (equipment, tools) or “tricks” (techniques with every-day items) they find useful in caregiving for family members with Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration, and Parkinson’s Disease.
Florida-based poet Carlton Johnson has been diagnosed with progressive supranuclear palsy. He published a book titled “A Thimble of Time” in 2020 (