We are sharing this announcement from Mission MSA:
Your home should support your life — not work against it. Join us for Living Better at Home: Adapting Your Space for Life with MSA, a free webinar happening on Tuesday, July 22 at 3:00pm ET.
We are sharing this announcement from Mission MSA:
Your home should support your life — not work against it. Join us for Living Better at Home: Adapting Your Space for Life with MSA, a free webinar happening on Tuesday, July 22 at 3:00pm ET.
From our friends at the National Organization for Rare Disorders (NORD):
You are invited to join the National Organization for Rare Disorders (NORD) for our upcoming virtual community conversation: Finding Strength in Self-Acceptance

Mitchell Miglis, MD
Join our webinar on orthostatic low blood pressure in parkinsonian syndromes – Parkinson’s Disease, Multiple System Atrophy, and Lewy Body Dementia.
Wednesday, August 13, 2:30-3:30pm PT
Join Brain Support Network and our friends with The AFTD and UCSF at “Fragments of Memories” at the San Francisco Community Music Center, on June 18, 2025, 6-8pm. This event merges music, theater, science, and storytelling to explore the psychological dimensions of aging and neurodegenerative diseases like Alzheimer’s disease and frontotemporal dementia (FTD).
Continue reading

credit: Ben Lazarus
Ben Lazarus was previously diagnosed with young onset Parkinson’s (at the age of 46) and started blogging about his experience back in August 2021. Then, in March 2025, his diagnosis changed to progressive supranuclear palsy (PSP), and he’s still blogging. His new blog site called “Living with and Fighting PSP,” at benlazpsp.com. Ben lives in Israel.