Caregiver’s Advice – “20 Lessons Learned the Hard Way”

A local Parkinson’s Disease (PD) caregiver support group member recently offered her highest recommendation for a book titled “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). We encourage you to buy it! Barbara authored five books before this one. She was a Parkinson’s care partner for over twenty years. Her latest book is “Advice from a Parkinson’s Widow.”

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“Advice From a Parkinson’s Wife: 20 Lessons…” (book review)

Advice From a Parkinson's Wife Book cover

Source: Barbara Sheklin Davis

Our friend Denise Dagan shared her book review of “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019).  Though “Parkinson’s” is in the title, this book will be of interest to caregivers coping with Lewy body dementia and the other atypical parkinsonism disorders.  While “wife” is in the title, this book will be of interest to all caregivers regardless of whether they are caring for a spouse or not.  Denise highly recommends the book and calls is a “quick read” (at 94 pages).  Her comments are shared here, and then Denise provides a summary of the 20 lessons.

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Top Three Things I Learned as a Caregiver (Recording, Discussion Summary, and Notes)

In December 2023, Brain Support Network and Stanford Parkinson’s Community Outreach co-hosted a discussion for caregivers to share the top three things they have learned about caregiving. Caregivers offered advice to each other, including advice caregivers wished they could tell their younger selves.

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