A local Parkinson’s Disease (PD) caregiver support group member recently offered her highest recommendation for a book titled “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). We encourage you to buy it! Barbara authored five books before this one. She was a Parkinson’s care partner for over twenty years. Her latest book is “Advice from a Parkinson’s Widow.”
Category Archives: Caregiving – Dementia
“Advice From a Parkinson’s Wife: 20 Lessons…” (book review)

Source: Barbara Sheklin Davis
Our friend Denise Dagan shared her book review of “Advice From a Parkinson’s Wife: 20 Lessons Learned the Hard Way,” by Barbara Sheklin Davis (2019). Though “Parkinson’s” is in the title, this book will be of interest to caregivers coping with Lewy body dementia and the other atypical parkinsonism disorders. While “wife” is in the title, this book will be of interest to all caregivers regardless of whether they are caring for a spouse or not. Denise highly recommends the book and calls is a “quick read” (at 94 pages). Her comments are shared here, and then Denise provides a summary of the 20 lessons.
Top Three Things I Learned as a Caregiver (Recording, Discussion Summary, and Notes)
In December 2023, Brain Support Network and Stanford Parkinson’s Community Outreach co-hosted a discussion for caregivers to share the top three things they have learned about caregiving. Caregivers offered advice to each other, including advice caregivers wished they could tell their younger selves.
“My father had dementia and I was his caregiver. Here’s what I wish I had known”

source: The Guardian
When Cynthia Dearborn became her 75-year-old father’s caregiver, she knew little about what lay ahead. Two decades on, she shares the insights that helped her help him Continue reading
Podcast on therapeutic deception and how dementia affects the family
In a recent episode of “The Doctor’s Art” podcast (May 16, 2023), Sandeep Jauhar, MD, PhD describes his role as a son and caregiver for a father with dementia. Dr. Jauhar’s recent book on this subject is titled “My Father’s Brain: Life in the Shadow of Alzheimer’s.”
