I stumbled across this blog today of a Canadian (?) gentleman with a PSP diagnosis and a frontotemporal dementia diagnosis:
He started the blog in January 2016 with a post with this title:
The personal journal of one man’s journey of living with a rare and little known neurodegenerative disease for which there is no treatment or cure called Progressive Supranuclear Palsy or PSP for short and Frontal Temporal Dementia- FTD
It reads more like a “Dear Diary” to me. And there’s not too much here on PSP. But, in case this catches someone’s eye, I’m sharing it…
Robin