Books about Dementia (recommended by members of FTD Support Forum)

The FTD Support Forum ( is an online support group for those dealing with frontotemporal degeneration, including progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS).  One of the moderators, Lea H, compiled a list of books on dementia recommended by group members.  The list is copied below (with Lea’s permission).  I’ve also provided the link on the off-chance that anyone is a member.



Post on FTD Support Forum
by:  Lea H
October 6, 2015  (updated many times)

I compiled a list of books that have been mentioned by members on the forum. I could have missed some of them, but here is my alpha list:


A Curious Kind of Widow, by Ann Davidson

Alzheimer’s, A Love Story One Year in My Husband’s Journey, by Ann Davidson

Ambiguous Loss, by Pauline Boss

Contented Dementia, by Oliver James

Dementia Care at a Glance, by Catharine Jenkins, Laura Ginesi, Bernie Keenan

Dueling With Dementia, Not The Love Story We Planned, by Kate Fritz Leonard

Hard Choices For Loving People, by Hank Dunn

I Remember When, by Tracy Mobley  (children’s book)

Life in the Balance, by Thomas Graboys, M.D.

Losing Louann, by Clinton Erb

Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey, by Deborah Shouse

Love, Laughter and Mayhem, by Cindy Keith, RN

Loving someone who has Dementia, by Pauline Boss

Measures of the Heart, by Mary Ellen Geist

Moving to the Center of the Bed: The Artful Creation of a Life Alone, by Sheila Weinstein

No Act of Love is Ever Wasted: The Spirituality of Caring for Persons with Dementia, by Jane Marie Thibault and Richard L. Morgan

Passages in Caregiving, by Gail Sheehy

Still Alice, by Lisa Genova

Suffering in Slow Motion, by Richard and Pamela Kennedy

Sweet Surrender: Awakening to the Riches of Dementia, by Holly Eburne

Ten Thousand Joys & Ten Thousand Sorrows: A Couple’s Journey Through Alzheimer’s, by Olivia Ames Hoblitzelle

The Art of Dementia Care, by Daniel Kuhn and Jane Verity

The Banana Lady and Other Stories of Curious Behavior and Speech, by Andrew Kertesz

The Other Dementia, by Katherine Nichols

The Selfish Pig’s Guide to Caregiving, by Hugh Marriott

The 36-hour day: a family guide to caring for people with Alzheimer disease, other dementias, and memory loss in later life, by Nancy L. Mace, Peter V. Rabins

What if it’s not Alzheimer’s : a caregiver’s guide to dementia, edited by Lisa Radin and Gary Radin

Where’s My Shoes? by Brenda Avadian

Young Hope’s Hand Guide to Dementia, by Tracy Mobley

Young Hope the Broken Road, by Tracy Mobley

Your Turn, by Laura S. Brown, PhD