UPDATED (11-27-17): This was a great conference! See our complete conference webpage here:
Here’s the tentative agenda (subject to small changes):
PSP/CBD Research Update and Practical Conference
Saturday, October 28, 2017
Crowne Plaza Foster City (California)
Brain Support Network
Organized in partnership with:
University of California San Francisco Memory & Aging Center
Generously sponsored in part by Biogen.
Check-in; continental breakfast; visit exhibitor tables
Welcome by Brain Support Network
RESEARCH UPDATE – PART ONE
Adam Boxer, MD, UCSF MAC – overview of PSP clinical research
Richard Tsai, MD, UCSF MAC – tau PET imaging for CBS
Dianna Wheaton, PhD, FTD Registry – update on the registry (which includes PSP and CBD)
Larry Golbe, MD, Rutgers Robert Wood Johnson – investigating the geographical cluster of PSP in France
Daniel Lee, PhD, University of South Florida, Tampa – pre-clinical research update on tauopathies
PANEL of previous five speakers, moderated by Alex Klein, PhD, CurePSP
RESEARCH UPDATE – PART TWO
Haung (Ho) Yu, PhD, Columbia – research update on clearance of misfolded tau protein
Stewart Clark, PhD, University of Buffalo – research update on creating a pre-clinical model for PSP
Adam Gerstenecker, PhD, University of Alabama at Birmingham – research update on functional ability in PSP
Gerard Schellenberg, PhD, Penn Neurodegeneration Genomics Center – what we know and don’t know about PSP and CBD genetics
PANEL of previous four speakers, moderated by Alex Klein, PhD, CurePSP
Lunch and visit exhibitor tables
PRACTICAL CONFERENCE – PART ONE
Donna Schempp, LCSW – resilience and coping
Leslie Wolf, person with CBD – Holding Steady on Shaky Ground
Phil Myers, (former) caregiver to wife with PSP, Brain Support Network – Eight Things We Learned From This Journey
Jeanette Brown, MD (retired), person with PSP – Being (a) Patient with PSP
PANEL of previous four speakers, moderated by Robin Ketelle, RN, UCSF MAC
PRACTICAL CONFERENCE – PART TWO
Sharon Sha, MD, Stanford – Corticobasal Syndrome, Corticobasal Degeneration, and Progressive Supranuclear Palsy: What are the Tauopathies?
Megan DePuy, SLP, private practice, San Mateo – what can we do about speech and swallowing problems?
Erica Pitsch, DPT, UCSF – what can we do about movement problems?
Heather Moss, MD, neuro-ophthalmology, Stanford – what can we do about eye movement problems?
PANEL of previous four speakers, moderated by Robin Riddle
Closing remarks by Brain Support Network
Note: We are using “CBD” to refer to both CBS and CBD.