In 2025, the Brain Support Network support group for those with a PSP (progressive supranuclear palsy), CBD (corticobasal degeneration), or CBS (corticobasal syndrome) diagnosis will gather virtually on the second Sunday, 12:30-1pm. Only those who live in Northern or Central California may join.
The meetings are loosely facilitated by a local support group member with a CBS diagnosis.Attendance is usually two to eight people. Most join by video but a few join by phone only. Caregivers may attend with as light a footprint as possible and only to speak for their family member or friend with a diagnosis.
Contact us if you’d like to be added to the meeting reminder email list. Confirm WHERE you live as these meetings are ONLY for those in Northern and Central California. And please clarify if the email address is that of a person with PSP, CBD, CBS, or a caregiver.
In 2025, the virtual meetings will be held 12:30-1pm on:
January 12
February 9
March 9
April 13
May 18 (THIRD Sunday)
June 8
July 13
August 10
September 14
October 12
November 9
December 14
Please put these PSP/CBD support group meeting dates on your calendars now.
Brain Support Network sends out reminders about a week before each meeting, requesting RSVPs by noon on the Saturday (one day) before each meeting. While RSVPs are not required, they are helpful so that we can know who might be attending.
These meetings are for those with either PSP or CBD/CBS. We bring these two diagnoses together because the symptoms are similar. PSP is a rare disorder while CBD is very rare. In fact, through brain donation, we learn that some people diagnosed during life with PSP actually have CBD, and vice versa. (We also learn that people may have different diseases entirely! These diagnoses are confirmed less than half the time. Please ask us about brain donation!)
We look forward to “seeing” you at a meeting some time!