
This event -- co-hosted by Stanford Movement Disorders Center and Brain Support Network -- was designed specifically for caregivers, partners, and family members who care for those with PSP (progressive supranuclear palsy), MSA (multiple system atrophy), and CBD (corticobasal degeneration).
Speakers included a Stanford movement disorder specialist on symptoms and treatment; a psychologist on the caregiver's journey; a social worker on caregiver stress; and a panel of PSP, MSA, and CBS caregivers, many of whom are Brain Support Network group members. (CBD is also known as CBS, corticobasal syndrome.)
Below, you will find:
- recordings, slides, brief summaries (one-minute reads), comprehensive notes, and the agenda
- survey link - please take!
- Brain Support Network's Top Resources for: PSP, MSA, and CBD
We thank CurePSP, the sponsor, and exhibitors (list below) for their support. We also appreciate those who generally purchased "scholarship" tickets which were provided to attendees who had a financial need.
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PROGRAM
THE COMPASSIONATE CAREGIVER'S JOURNEY: EMPATHY AND CHALLENGES
Dale G. Larson, PhD
Clinical Psychologist, Santa Clara University
Comprehensive Notes (6 minute read)
WHAT CAREGIVERS CAN DO FOR PSP - MSA - CBD
Jessica Ng, MD
Movement Disorder Specialist, Stanford
RELATIONSHIPS, CAREGIVER STRESS, AND RESOURCES

Christina Irving, LCSW
Director of Client Services, Family Caregiver Alliance
PSP - MSA - CBS CAREGIVER PANEL
Moderated by Candy Welch
Leader, Brain Support Network's MSA Caregiver Group and Board Member
Panelists:
Doug (PSP) - Ellen (PSP)
Joan (MSA) - Kaly (MSA)
Diane (CBS) - David (CBS)
TOP RESOURCES
PSP- TOP RESOURCES
Brain Support Network’s List of Top PSP Resources (which includes some “oldies but goodies”)
MSA - TOP RESOURCES
Brain Support Network’s List of Top MSA Resources (which includes some “oldies but goodies”)
CBD - TOP RESOURCES
Brain Support Network’s List of Top CBD Resources (which includes some “oldies but goodies”)
EXHIBITORS
Slides from Sponsor and Exhibitors
CurePSP - Find support in your journey with PSP, CBD or MSA with our generous event sponsor.
Acadia Pharmaceuticals
- Advancing breakthroughs in neuroscience to elevate life.
American Parkinson's Disease Association - nationwide grassroots network dedicated to fighting Parkinson's disease (PD
The Association for Frontotemporal Degeneration
- Advancing breakthroughs in neuroscience to elevate life.
Care Indeed
- Your Partner in Exceptional Senior Care
Family Caregiver Alliance - Improving the quality of the life for family caregivers and the people who receive their care
Home Instead
- Connecting families to trusted home care.
Right at Home
- Let’s start talking about living.
Tobii Dynavox
- Assistive communication solutions




