This upcoming event is for caregivers, partners, and family members who care for those with progressive supranuclear palsy (PSP), multiple system atrophy (MSA), or corticobasal degeneration (CBD). (CBD is also referred to as corticobasal syndrome, or CBS.)
Speakers include a Stanford movement disorder specialist on the topic of what caregivers can do for these three atypical parkinsonism disorders; social workers on the effects neurological decline has on the family unit, caregiver stress, and resources; and a panel of Brain Support Network PSP, MSA, and CBD caregiver support group members.
This will be a hybrid event – virtual and in-person on Stanford campus. The event will run from 10am to 3pm PT on Saturday, June 14, 2025.
Registration will open by May 1, 2025! Be sure you are on the email list to receive info as to when registration opens.
The co-hosts—Brain Support Network and Stanford's Movement Disorders Center—thank the generosity of our sponsor CurePSP.
Questions? Or would you like to exhibit at the in-person event? Please contact Brain Support Network.
Share the Save-the-Date flyer.
Our speakers include:
WHAT CAREGIVERS CAN DO FOR PSP - MSA - CBD
Jessica Ng, MD
Movement Disorder Specialist, Stanford
RELATIONSHIPS, CAREGIVER STRESS, AND RESOURCES
Amy Romarate, LCSW
Neurology Social Worker, Stanford
Christina Irving, LCSW
Director of Client Services, Family Caregiver Alliance
PSP - MSA - CBD CAREGIVER PANEL
Moderated by Candy Welch
Leader, Brain Support Network's MSA Caregiver Group and Board Member
The panel is always a highlight of our events. Hear from PSP, MSA, and CBD caregivers!
PSP- TOP RESOURCES
Brain Support Network’s List of Top PSP Resources (which includes some “oldies but goodies”)
CBD - TOP RESOURCES
Brain Support Network’s List of Top CBD Resources (which includes some “oldies but goodies”)
RESEARCH
Research coordinators from Stanford and UCSF attended the event. They are enrolling people in studies or on the verge of it. We have provided links to their speaking about their research, study information, etc.
Jiwon Yeon, PhD, Stanford: investigating eye tracking behavior in PSP
Ze Yang, PhD, Stanford: researching biomarkers in CBS
Anthony Gonzalez Velasquez, Stanford: contact him to be added to a list of San Francisco Bay Area PSP people interested in research
Christine Walsh, PhD, UCSF: investigating sleep in PSP or CBS/CBD
Jacque Perkins, UCSF: recruiting PSP, CBS, and CBD for the TOPAZ trial. Age 60 and up.
PSP/CBD QUIZ
Take the quiz! See how you do on 25 questions about progressive supranuclear palsy and corticobasal degeneration.
SYMPOSIUM EVALUATION
Whether you attended the symposium live or are watching the recordings later, please share feedback through this very short survey.
THANK YOU!
If you attended on June 29, 2024, THANK YOU. We know it's not easy to dedicate several hours to education -- whether you are a person with PSP, CBD/CBS, or a caregiver. And thanks to those who submitted questions and completed a survey, giving us your feedback.
For the in-person event at Stanford, we thank those who volunteered their time to make the symposium successful -- members of the Brain Support Network community, Stanford Neurology staff, UCSF Neurology staff, and other volunteers. And we thank our exhibitors (Acadia Pharmaceuticals and Tobii Dynavox), on-site at Stanford.