PSP-MSA-CBD Caregiving Symposium, Saturday, June 14, 2025 – Recordings, Slides, Notes, and Resources

This event -- co-hosted by Stanford Movement Disorders Center and Brain Support Network -- was designed specifically for caregivers, partners, and family members who care for those with PSP (progressive supranuclear palsy), MSA (multiple system atrophy), and CBD (corticobasal degeneration).

Speakers included a Stanford movement disorder specialist on symptoms and treatment; a psychologist on the caregiver's journey; a social worker on caregiver stress; and a panel of PSP, MSA, and CBS caregivers, many of whom are Brain Support Network group members.  (CBD is also known as CBS, corticobasal syndrome.)

Below, you will find:

  • recordings, slides, brief summaries (one-minute reads), comprehensive notes, and the agenda
  • survey link - please take!
  • Brain Support Network's Top Resources for:  PSP, MSA, and CBD

We thank CurePSP, the sponsor, and exhibitors (list below) for their support.  We also appreciate those who generally purchased "scholarship" tickets which were provided to attendees who had a financial need.

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PROGRAM

THE COMPASSIONATE CAREGIVER'S JOURNEY:  EMPATHY AND CHALLENGES


Dale G. Larson, PhD
Clinical Psychologist, Santa Clara University

Slides

Video

Brief Summary (1 minute read)

Comprehensive Notes (6 minute read)

 

WHAT CAREGIVERS CAN DO FOR PSP - MSA - CBD


Jessica Ng, MDJessica Ng, MD
Movement Disorder Specialist, Stanford

Slides

Video

REM Sleep Behavior Disorder - Short Video

Stridor - Short Audio Clip

Brief Summary (1 minute read)

Comprehensive Notes  (11 minute read)

RELATIONSHIPS, CAREGIVER STRESS, AND RESOURCES


Christina Irving, LCSW
Director of Client Services, Family Caregiver Alliance

Slides

Video

Caregiver Speaking on Self-Care - Short Video

Brief Summary (1 minute read)

Comprehensive Notes (10 minute read)

PSP - MSA - CBS CAREGIVER PANEL


Candy WelchModerated by Candy Welch
Leader, Brain Support Network's MSA Caregiver Group and Board Member

Panelists:
Doug (PSP) - Ellen (PSP)
Joan (MSA) - Kaly (MSA)
Diane (CBS) - David (CBS)

Video

Brief Summary (1 minute read)

Comprehensive Notes (7 minute read)

SYMPOSIUM EVALUATION


Please share feedback through this very short survey.

SYMPOSIUM AGENDA


Agenda

Download

TOP RESOURCES

PSP- TOP RESOURCES


Brain Support Network’s List of Top PSP Resources (which includes some “oldies but goodies”)

Printable PDF (shorter version)

MSA - TOP RESOURCES


Brain Support Network’s List of Top MSA Resources (which includes some “oldies but goodies”)

Printable PDF (shorter version)

CBD - TOP RESOURCES


Brain Support Network’s List of Top CBD Resources (which includes some “oldies but goodies”)

Printable PDF (shorter version)

EXHIBITORS


Slides from Sponsor and Exhibitors

 

CurePSPCurePSP - Find support in your journey with PSP, CBD or MSA with our generous event sponsor.


Acadia Pharmaceuticals Acadia Pharmaceuticals- Advancing breakthroughs in neuroscience to elevate life.

 


American Parkinson's Disease Association - nationwide grassroots network dedicated to fighting Parkinson's disease (PD

 


The Association for Frontotemporal Degeneration AFTD - The Association for Frontotemporal Degeneration- Advancing breakthroughs in neuroscience to elevate life.

 


Care IndeedCare Indeed - Your Partner in Exceptional Senior Care

 

 


Family Caregiver Alliance - Improving the quality of the life for family caregivers and the people who receive their care

 


Home InsteadHome Instead - Connecting families to trusted home care.


Right at HomeRight at Home - Let’s start talking about living.

 


Tobii Dynavoxtobii dynavox - Assistive communication solutions